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It was a tough question, unlikely to have a direct answer. The hope
had been that superior searching skills would might have found
something tucked away somewhere. A good deal of what was supplied I
already had, but there were a few extra pointers that were worth
having. A couple of points:

1. I'm not very fond of being quoted to in the terms of "I have spent
many, many hours...". Surely this is a risk a researcher takes on when
they decide to "have a go" at answering the question. While I'm sure
no real harm was intended, it wouldn't be hard to see such a claim as
sort of "guilt gamble", encouraging one to accept the work as an
answer where, really, it doesn't.

2. The added "twist" I'd hadn't thought of was actually taking the
initiative to contact different agencies in the field directly. I
hadn't thought people would go to this extent and appreciated it.
However, I'd like to flag an issue: contacting people directly in this
fashion could, in some circumstances, "tip off" the competition as to
what's going on. In this case it's not such an issue, but I can
imagine others where such direct enquiries have the chance of being
quite indiscreet. Perhaps some forewarning or contact with the person
posting the question would help avoid this.

But, overall, a solid response.

Lack of real example on your answer.

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it was an extremely  thorough response, but  most of it - myopathies -
 i already know (plus there is no neurological involvement).
it was suggested to see a specialist in myopatic disorders...so who is
the LEADING  specialist in this?????  it also mentioned out-
patient tests to determine which myopathy a person has...so where is
the best?  the summary it  hoped that i had a better understanding
of myopathies, which was kind, but i already know that...tests have
been done at ucfs but the findings were inconclusive...i was
really hoping for names of doctors at research facilities.

Thank you for your assistance. Your research was very thorough ... It
is far more than I have been able to find in the past, and I
appreciate your efforts in finding some excellent resources.

A belated thank you!

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First time I've used your service - very impressed. Many thanks.

This answer was thorough and demonstrated significant time and effort
by the researcher.  It seems that the available resources themselves
are inadequate, however, so it looks like a definitive answer was not
possible.  I will definitely be able to use the researcher's leads to
focus and direct my real-world leg-work.

This researcher did a very thorough job and provided me with a lot of
information and options!

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Excellent answer. In fact, I'm very grateful to you and searchbot and
all the others who added such helpful comments - you've kept me on
this planet. (Sorry for not commenting earlier - my mood's been
yo-yo'ing and you wouldn't believe the stuff I've been going through
over the past week!) Many thanks again to everyone. :)

Thorough and helpful. By including brief quotes from many resources I
got the "story" and the footnotes from the researcher.

Good answer, but mostly references to highly priced commercial
reports. Ideally I would have liked to see more creative searches and
digging to come up with more "exclusive" data. Perhaps a correlation
to other markets with similar characteristics, but more available
statistics would have been useful.
In all a fair answer for a very though question.

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Excellent - saved much valuable time in not having to traul for this info!

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Thanks for the help.

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Excellent and thorough response, many thanks for you r help.

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This is much more than I expected. I had no idea how great this
service is! Look forward to working with you again.

This is great.  I'm thankful for the work put into this answer.

fantastic service, thank you very much

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Urine a special place in my heart(bladder?)  thanks for a great and speedy answer.

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Great web site! Thank you so much!

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I appreciate all the research and certainly have some places to look into.

Thank you!!!!

best 5 bucks i ever spent!!!