I am looking for someone who can "talk" to me about this condition. 
What can one expect in the future; health wise? Thanks!

Hello dudda-ga,

At the outset, I should note that I am not a doctor.  As a Researcher
for Google Answers, I cannot provide medical advice; I can only show
you what I have found on this topic.

There is a lot of information about Shy-Drager Syndrome on the
Internet.  (Many people add an extra "g" in Drager; but the official
spelling is "Shy-Drager Syndrome".)  The disorder is also called
"multiple system atrophy" (MSA), as well as some other names.  There
are several pages from reputable sites which describe this disorder in
detail, including:

"Multiple system atrophy"
MEDLINEplus Health Information
http://www.nlm.nih.gov/medlineplus/ency/article/000757.htm

"Shy Drager Syndrome"
WebMD
http://my.webmd.com/content/healthwise/49/12106.htm

"What is Shy-Drager Syndrome/Multiple System Atrophy?"
SDS/MSA Support Group
http://www.shy-drager.com/sdssg.htm

"NINDS Shy-Drager Syndrome Information Page" (reviewed 07-01-2001)
National Institute of Neurological Disorders and Stroke  
http://www.ninds.nih.gov/health_and_medical/disorders/shydrger_doc.htm

"Multiple System Atrophy"
WE MOVE [Worldwide Education and Awareness for Movement Disorders]
http://www.wemove.org/msa.html

"Multiple System Atrophy"
National Dysautonomia Research Foundation (NDRF)
http://www.ndrf.org/MSA.htm

With respect to what one can expect in the future, healthwise, these
pages describe the course of the disorder.  According to the WebMD
article:

"The course of Shy-Drager syndrome is variable.  For example, some
affected individuals may have mild symptoms for several years.  Others
may experience severe symptoms early in the course of the disease."

So it may depend on the individual on what one can expect at a
particular time in the future.

The WE MOVE page describes the complications of the disorder:

"MSA progresses over the course of several years to cause more
widespread and severe symptoms.  Orthostatic hypotension can cause
fainting and falls.  Loss of coordination, slowed movements, and
rigidity can interfere with activities of daily living.  Some patients
with MSA have mild loss of cognitive abilities, with impairments in
attention and speed of thinking."

According to MEDLINEplus, NINDS, and WE MOVE, several symptoms of the
disease may be treated or controlled, at least to some extent.  WE
MOVE says that the treatments "become less effective as the disease
progresses".  The MEDLINEplus and NINDS pages indicate that the
progression of the disease itself currently cannot be treated or
slowed.

Since you are looking for someone who can "talk" to you about this
condition, you might be interested in two web sites.  One is a forum
for discussing the disorder, and includes news items:

"Shy Drager (Multiple Systems Atrophy)"
BrainTalk Communities - Neurology Support Groups
Department of Neurology at Massachusetts General Hospital
http://neuro-mancer.mgh.harvard.edu/cgi-bin/forumdisplay.cgi?action=topics&forum=Shy+Drager+(Multiple+Systems+Atrophy)&number=85&DaysPrune=1000&LastLogin=

The other is the SDS/MSA Support Group, a page of which I included
above.  This site contains several resources, including links for
doctors, clinics, and support groups in the United States.

SDS/MSA Support Group
http://www.shy-drager.com/

I hope that this information is helpful to you.

- justaskscott-ga


Search terms used on Google:

"shy dragger"
"shy drager"

Thank you for doing all the research that I did not know how to get! 
I also appreciate the thoroughness even to listing all the support
groups. I expect to get in touch with the one closest to my location.
I probably will visit "google" again if I have more questions in the
future.