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Q: Resources for women with Chronic Fatigue Syndrome (in the USA) ( Answered 5 out of 5 stars,   2 Comments )
Question  
Subject: Resources for women with Chronic Fatigue Syndrome (in the USA)
Category: Health > Women's Health
Asked by: raggedyrush-ga
List Price: $8.00
Posted: 28 Dec 2002 16:58 PST
Expires: 27 Jan 2003 16:58 PST
Question ID: 134449
I would like a list of organizations, internet websites, and/or chat
support groups focused on helping women with Chronic Fatigue Syndrome
(CFS).  As much information on currently active sites and
organizations are appreciated.
Answer  
Subject: Re: Resources for women with Chronic Fatigue Syndrome (in the USA)
Answered By: kevinmd-ga on 28 Dec 2002 20:28 PST
Rated:5 out of 5 stars
 
Hello, 
Thanks for asking your question.   You asked the following:
“I would like a list of organizations, internet websites, and/or chat
support groups focused on helping women with Chronic Fatigue Syndrome
(CFS).  As much information on currently active sites and
organizations are appreciated.”

Here are some links to relevant CFS websites, organizations, and
support groups.

Immunesupport.com:
“World’s largest fibromyalgia and chronic fatigue syndrome site.”
http://www.immunesupport.com/

and

http://www.chronicfatiguesupport.com/

Pro Health's CFS (chronic fatigue syndrome) & FM (fibromyalgia)
Message Board:
http://www.immunesupport.com/chat/forums/index.cfm?b=FM

Support group listings (for CFS and fibromyalgia):
http://www.immunesupport.com/supportgroups/

EZBoard Chronic fatigue syndrome and fibromyalgia discussion group:
http://pub66.ezboard.com/bfibromyalgiaandchronicfatiguesyndrome

CDC – Chronic fatigue syndrome:
http://www.cdc.gov/ncidod/diseases/cfs/support/index.htm

CDC – Chronic fatigue syndrome support groups within the USA:
http://www.cdc.gov/ncidod/diseases/cfs/support/supus.htm

CDC – Chronic fatigue syndrome support groups outside the USA:
http://www.cdc.gov/ncidod/diseases/cfs/support/supout.htm

CDC – How to select a support group for CFS:
http://www.cdc.gov/ncidod/diseases/cfs/support/index.htm#Select

CFIDS Association of America:
“Chronic fatigue and immune dysfunction syndrome (CFIDS, also known as
chronic fatigue syndrome, CFS, myalgic encephalomyelitis, ME and by
many other names) is a complex and debilitating chronic illness that
affects the brain and multiple body systems. On this portion of our
Web site you can find detailed information about CFIDS, its symptoms,
diagnosis, treatment, important research findings, and how it affects
the lives of those who live with it everyday.”
http://www.cfids.org/

Chronic Syndrome Support Association:
“The Chronic Syndrome Support Association, Inc., is a 501(c)3
non-profit corporation.  It was founded in order to educate the
general population and health-care professionals who lack current
knowledge of the research being done, and potential research that
needs to be done, on these serious, yet invisible, Chronic
Immunological and Neurological Disorders (CIND), which include
Fibromyalgia Syndrome (FMS), Gulf War Syndrome (GWS), Multiple
Chemical Sensitivities Syndrome (MCS), Myalgic Encephalomyelitis (ME,
the term used in most of the world) / Chronic Fatigue Syndrome (CFS,
the term used in the United States), Chronic Myofascial Pain (CMP),
Post-Polio Syndrome (PPS) and related illnesses.  It is our goal to
promote awareness of these illnesses, and in the process we hope to
contribute to the growing body of knowledge about them.”
http://www.cssa-inc.org/

Co-Cure.org:
“The name "Co-Cure" stands for "Co-operate and Communicate for a
Cure." The mailing list has been established with the goal of
furthering co-operative efforts towards finding the cure for the
illness(es) commonly referred to as Chronic Fatigue Syndrome (CFS) and
Fibromyalgia (FM).”
http://www.co-cure.org/

Patient handout on CFS from Familydoctor.org:
http://familydoctor.org/handouts/031.html

They also list the following:
National Chronic Fatigue Syndrome and Fibromyalgia Association 
P.O. Box 18426 
Kansas City, MO 64133 
816-313-2000 (24-hour number) 

Yahoo Health – List of CFS sites:
http://dir.yahoo.com/Health/Diseases_and_Conditions/Chronic_Fatigue_Syndrome/

Noah Health – List of CFS sites:
http://www.noah-health.org/english/illness/neuro/cfs.html

AACFS:
“The American Association for Chronic Fatigue Syndrome (AACFS) is a
non-profit organization of research scientists, physicians, licensed
medical healthcare professionals, and other individuals and
institutions interested in promoting the stimulation, coordination,
and exchange of ideas for CFS research and patient care as well as
periodic reviews of current clinical, research and treatment ideas on
CFS for the benefit of CFS patients and others.”
http://www.aacfs.org/

Medline Plus – Chronic fatigue syndrome:
http://www.nlm.nih.gov/medlineplus/chronicfatiguesyndrome.html

New Jersey Chronic Fatigue and Fibromyalgia Center:
http://www.umdnj.edu/cfsweb/CFS/cfshome.html

Chronic Fatigue Syndrome Electronic Newsletter:
http://www.cfs-news.org/cfs-news.htm

I hope that this provides a good starting point for your Chronic
Fatigue Syndrome issues.

Please use any answer clarification before rating this answer.  I will
be happy to explain or expand on any issue you may have. 
 
Thanks, 
Kevin, M.D.

Search strategy (using FAST, Google, Inktomi and Teoma via Hotbot.com)
Chronic fatigue syndrome support
raggedyrush-ga rated this answer:5 out of 5 stars
Thank you very much.  This is exactly the type of information I am looking for.

Comments  
Subject: Re: Resources for women with Chronic Fatigue Syndrome (in the USA)
From: bobbie7-ga on 28 Dec 2002 20:52 PST
 
In addition to the excellent answer that Kevinmd gave you, I would
like to add the following  links.

=============
Organizations
=============

National CFIDS Foundation
http://www.ncf-net.org/
 
R.E.S.C.I.N.D.
http://www.geocities.com/CapitolHill/4277/
 
Alison Hunter Memorial Foundation
http://www.ahmf.org/
 
Compassion in Action Foundation and Centre
http://www.compassioninaction.ca
 
Northern Rivers ME/CFS/FM Support Association
http://www.nrg.com.au/~nrmecfs/index.html
 
New Jersey Chronic Fatigue Syndrome Association
http://njcfsa.org/
 
Chronic Fatigue Syndrome Association of Long Island
http://www.geocities.com/HotSprings/Spa/4225/index.html
 
CFIDS Emergency Relief Services, Inc.
http://www.cfidsers.org
 
The Connecticut CFIDS & FM Association, Inc
http://www.ct-cfids-fm.org
 
Wisconsin Chronic Fatique Syndrome Association
http://www.wicfs-me.org/
 
M.E.S.S
http://cfids-cab.org/mess/
 
The Chronic Fatigue Syndrome Society for Neuroimmunomodulation
Research
http://www.square-sun.co.uk/cfs-nim/

Chicago CFS Association
http://www.chicagocfs.org/

Nightingale Research Foundation
http://www.cyberus.ca/~bhyde/
 

==============================
Support Groups Chat and E-mail
==============================

Online Communities / Message Boards, Chats and Usenet Groups, 
http://www.supportpath.com/sl_c/chronic_fatigue_syndrome.htm
 
CFS-L Patients Discussion Group
http://cfs-l.home.att.net/

Chronic Fatigue Syndrome, Endometriosis and related disorders -
http://www.recoverypages.com
 
Shasta CFIDS
http://www.shasta.com/cybermom/
 
Chronic Fatigue Syndrome Association of Arizona
http://www.CFSofAZ.org

Northern Virginia CFS Support Group
http://www.geocities.com/cfsnova/
 
CFIDS / FMS Support Group of Rockland County
http://cfidsfms.tripod.com
 
The Action for ME/CFS Pregnancy Network
http://www.pregnet.org/
 
Seattle CFS Support Group
http://www.geocities.com/seattlecfs/index.html
 
Support and Friendship
http://angela-larsen.tripod.com/friendshipandsupportforall/index.html

Portland CFIDS Association
http://community.oregonlive.com/cc/cfids

CFS/FMS Over 21
http://groups.yahoo.com/group/CfsFmsOver21/
 
CFS Friends
http://cfs_friends.tripod.com
 
The CFIDS/M.E. Association of Mississippi, Inc
http://cfids-miss.org
 
Christian Chronic Fatigue Syndrome
http://www.angelfire.com/me4/b-cfs
 
CFIDS/FMS Self-Help
http://home.flash.net/~brucepa/index.htm
 
CFS~Y Youth Discussion Group
http://www.enabling.org/ia/cfs-y/

CF Pen Pal Alliance
http://groups.yahoo.com/group/CFPenPal/


============================
CFS Information and Research 
============================


CFS Research News
http://www.cfids.org/archives/research-review-issues.asp

You will find a wealth of Chronic Fatigue Syndrome Resources here:
http://www.cfs-news.org/index.htm#TALK

Chronic Fatigue Syndrome Research Updates
http://home.ease.lsoft.com/archives/cfsresearch-updates.html

Research and Treatment Publications on CFS
http://www.cfsresearch.org/cfs/

Various resources on CFS/ME
http://ds.dial.pipex.com/comcare/cfs.html

The Electronic Journal for FMS/CFS
http://www.fmsjournal.com

Chronic Fatigue Syndrome News
http://www.chronicfatiguesyndromenews.com

ME-NET - Chronic Fatigue Syndrome
http://www.me-net.dds.nl
 
Carol's CFS Place
http://www.inx.net/~carolynv/carols.htm
  
The CFIDS/ME Information Page 
http://www.cfids-me.org/
 
Your Chronic Fatigue Syndrome Resource
http://www.chronicfatiguesupport.com

CFS Research by Dr. Jacob Teitelbaum
http://www.endfatigue.com

Chronic Fatigue Syndrome
http://www.chronicillnet.org/CFS/
Subject: Re: Resources for women with Chronic Fatigue Syndrome (in the USA)
From: raggedyrush-ga on 30 Dec 2002 12:28 PST
 
Bobbie7 - thank you for this very helpful additional information.  Wonderful!

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