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Subject:
Resources for women with Chronic Fatigue Syndrome (in the USA)
Category: Health > Women's Health Asked by: raggedyrush-ga List Price: $8.00 |
Posted:
28 Dec 2002 16:58 PST
Expires: 27 Jan 2003 16:58 PST Question ID: 134449 |
I would like a list of organizations, internet websites, and/or chat support groups focused on helping women with Chronic Fatigue Syndrome (CFS). As much information on currently active sites and organizations are appreciated. |
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Subject:
Re: Resources for women with Chronic Fatigue Syndrome (in the USA)
Answered By: kevinmd-ga on 28 Dec 2002 20:28 PST Rated: |
Hello, Thanks for asking your question. You asked the following: I would like a list of organizations, internet websites, and/or chat support groups focused on helping women with Chronic Fatigue Syndrome (CFS). As much information on currently active sites and organizations are appreciated. Here are some links to relevant CFS websites, organizations, and support groups. Immunesupport.com: Worlds largest fibromyalgia and chronic fatigue syndrome site. http://www.immunesupport.com/ and http://www.chronicfatiguesupport.com/ Pro Health's CFS (chronic fatigue syndrome) & FM (fibromyalgia) Message Board: http://www.immunesupport.com/chat/forums/index.cfm?b=FM Support group listings (for CFS and fibromyalgia): http://www.immunesupport.com/supportgroups/ EZBoard Chronic fatigue syndrome and fibromyalgia discussion group: http://pub66.ezboard.com/bfibromyalgiaandchronicfatiguesyndrome CDC Chronic fatigue syndrome: http://www.cdc.gov/ncidod/diseases/cfs/support/index.htm CDC Chronic fatigue syndrome support groups within the USA: http://www.cdc.gov/ncidod/diseases/cfs/support/supus.htm CDC Chronic fatigue syndrome support groups outside the USA: http://www.cdc.gov/ncidod/diseases/cfs/support/supout.htm CDC How to select a support group for CFS: http://www.cdc.gov/ncidod/diseases/cfs/support/index.htm#Select CFIDS Association of America: Chronic fatigue and immune dysfunction syndrome (CFIDS, also known as chronic fatigue syndrome, CFS, myalgic encephalomyelitis, ME and by many other names) is a complex and debilitating chronic illness that affects the brain and multiple body systems. On this portion of our Web site you can find detailed information about CFIDS, its symptoms, diagnosis, treatment, important research findings, and how it affects the lives of those who live with it everyday. http://www.cfids.org/ Chronic Syndrome Support Association: The Chronic Syndrome Support Association, Inc., is a 501(c)3 non-profit corporation. It was founded in order to educate the general population and health-care professionals who lack current knowledge of the research being done, and potential research that needs to be done, on these serious, yet invisible, Chronic Immunological and Neurological Disorders (CIND), which include Fibromyalgia Syndrome (FMS), Gulf War Syndrome (GWS), Multiple Chemical Sensitivities Syndrome (MCS), Myalgic Encephalomyelitis (ME, the term used in most of the world) / Chronic Fatigue Syndrome (CFS, the term used in the United States), Chronic Myofascial Pain (CMP), Post-Polio Syndrome (PPS) and related illnesses. It is our goal to promote awareness of these illnesses, and in the process we hope to contribute to the growing body of knowledge about them. http://www.cssa-inc.org/ Co-Cure.org: The name "Co-Cure" stands for "Co-operate and Communicate for a Cure." The mailing list has been established with the goal of furthering co-operative efforts towards finding the cure for the illness(es) commonly referred to as Chronic Fatigue Syndrome (CFS) and Fibromyalgia (FM). http://www.co-cure.org/ Patient handout on CFS from Familydoctor.org: http://familydoctor.org/handouts/031.html They also list the following: National Chronic Fatigue Syndrome and Fibromyalgia Association P.O. Box 18426 Kansas City, MO 64133 816-313-2000 (24-hour number) Yahoo Health List of CFS sites: http://dir.yahoo.com/Health/Diseases_and_Conditions/Chronic_Fatigue_Syndrome/ Noah Health List of CFS sites: http://www.noah-health.org/english/illness/neuro/cfs.html AACFS: The American Association for Chronic Fatigue Syndrome (AACFS) is a non-profit organization of research scientists, physicians, licensed medical healthcare professionals, and other individuals and institutions interested in promoting the stimulation, coordination, and exchange of ideas for CFS research and patient care as well as periodic reviews of current clinical, research and treatment ideas on CFS for the benefit of CFS patients and others. http://www.aacfs.org/ Medline Plus Chronic fatigue syndrome: http://www.nlm.nih.gov/medlineplus/chronicfatiguesyndrome.html New Jersey Chronic Fatigue and Fibromyalgia Center: http://www.umdnj.edu/cfsweb/CFS/cfshome.html Chronic Fatigue Syndrome Electronic Newsletter: http://www.cfs-news.org/cfs-news.htm I hope that this provides a good starting point for your Chronic Fatigue Syndrome issues. Please use any answer clarification before rating this answer. I will be happy to explain or expand on any issue you may have. Thanks, Kevin, M.D. Search strategy (using FAST, Google, Inktomi and Teoma via Hotbot.com) Chronic fatigue syndrome support |
raggedyrush-ga
rated this answer:
Thank you very much. This is exactly the type of information I am looking for. |
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Subject:
Re: Resources for women with Chronic Fatigue Syndrome (in the USA)
From: bobbie7-ga on 28 Dec 2002 20:52 PST |
In addition to the excellent answer that Kevinmd gave you, I would like to add the following links. ============= Organizations ============= National CFIDS Foundation http://www.ncf-net.org/ R.E.S.C.I.N.D. http://www.geocities.com/CapitolHill/4277/ Alison Hunter Memorial Foundation http://www.ahmf.org/ Compassion in Action Foundation and Centre http://www.compassioninaction.ca Northern Rivers ME/CFS/FM Support Association http://www.nrg.com.au/~nrmecfs/index.html New Jersey Chronic Fatigue Syndrome Association http://njcfsa.org/ Chronic Fatigue Syndrome Association of Long Island http://www.geocities.com/HotSprings/Spa/4225/index.html CFIDS Emergency Relief Services, Inc. http://www.cfidsers.org The Connecticut CFIDS & FM Association, Inc http://www.ct-cfids-fm.org Wisconsin Chronic Fatique Syndrome Association http://www.wicfs-me.org/ M.E.S.S http://cfids-cab.org/mess/ The Chronic Fatigue Syndrome Society for Neuroimmunomodulation Research http://www.square-sun.co.uk/cfs-nim/ Chicago CFS Association http://www.chicagocfs.org/ Nightingale Research Foundation http://www.cyberus.ca/~bhyde/ ============================== Support Groups Chat and E-mail ============================== Online Communities / Message Boards, Chats and Usenet Groups, http://www.supportpath.com/sl_c/chronic_fatigue_syndrome.htm CFS-L Patients Discussion Group http://cfs-l.home.att.net/ Chronic Fatigue Syndrome, Endometriosis and related disorders - http://www.recoverypages.com Shasta CFIDS http://www.shasta.com/cybermom/ Chronic Fatigue Syndrome Association of Arizona http://www.CFSofAZ.org Northern Virginia CFS Support Group http://www.geocities.com/cfsnova/ CFIDS / FMS Support Group of Rockland County http://cfidsfms.tripod.com The Action for ME/CFS Pregnancy Network http://www.pregnet.org/ Seattle CFS Support Group http://www.geocities.com/seattlecfs/index.html Support and Friendship http://angela-larsen.tripod.com/friendshipandsupportforall/index.html Portland CFIDS Association http://community.oregonlive.com/cc/cfids CFS/FMS Over 21 http://groups.yahoo.com/group/CfsFmsOver21/ CFS Friends http://cfs_friends.tripod.com The CFIDS/M.E. Association of Mississippi, Inc http://cfids-miss.org Christian Chronic Fatigue Syndrome http://www.angelfire.com/me4/b-cfs CFIDS/FMS Self-Help http://home.flash.net/~brucepa/index.htm CFS~Y Youth Discussion Group http://www.enabling.org/ia/cfs-y/ CF Pen Pal Alliance http://groups.yahoo.com/group/CFPenPal/ ============================ CFS Information and Research ============================ CFS Research News http://www.cfids.org/archives/research-review-issues.asp You will find a wealth of Chronic Fatigue Syndrome Resources here: http://www.cfs-news.org/index.htm#TALK Chronic Fatigue Syndrome Research Updates http://home.ease.lsoft.com/archives/cfsresearch-updates.html Research and Treatment Publications on CFS http://www.cfsresearch.org/cfs/ Various resources on CFS/ME http://ds.dial.pipex.com/comcare/cfs.html The Electronic Journal for FMS/CFS http://www.fmsjournal.com Chronic Fatigue Syndrome News http://www.chronicfatiguesyndromenews.com ME-NET - Chronic Fatigue Syndrome http://www.me-net.dds.nl Carol's CFS Place http://www.inx.net/~carolynv/carols.htm The CFIDS/ME Information Page http://www.cfids-me.org/ Your Chronic Fatigue Syndrome Resource http://www.chronicfatiguesupport.com CFS Research by Dr. Jacob Teitelbaum http://www.endfatigue.com Chronic Fatigue Syndrome http://www.chronicillnet.org/CFS/ |
Subject:
Re: Resources for women with Chronic Fatigue Syndrome (in the USA)
From: raggedyrush-ga on 30 Dec 2002 12:28 PST |
Bobbie7 - thank you for this very helpful additional information. Wonderful! |
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