Hello, ronnie2-ga!
I am sure you are anxious to find sources of help for your daughter,
so I have pointed you to the best program I can find at the moment.
The Cornell Juvenille Diabetes Program lists several different forms
of diabetes on their website at
http://pedsendo.med.cornell.edu/diabetes/kb/other.html
Your daughter's symptoms seem to fall under this category:
Diabetes associated with Autoimmune diseases:
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"Whereas type 1 diabetes is often the result of an autoimmune disease
against the pancreatic islets, other autoimmune diseases are also
associated with diabetes. These include type B insulin resistance with
insulin receptor autoantibodies, juvenile dermatomyositis,
ataxia-telangiectasia with insulin autoantibodies, and stiff man
syndrome resulting from autoantibodies against glutamic acid
decarboxylase (GAD) affecting the cerebellum and islets. Diabetes is
commonly seen as part of type 2 auto-immune poly-glandular syndrome
(APS-2, with Addison's disease, thyroid autoimmunity, gastric
achlorhydria/pernicious anemia, vitiligo etc) and less commonly with
APS-1 (chronic muco-cutaneous moniliasis, hypoparathyroidism,
Addison's disease, chronic active hepatitis, hypopituitarism, alopecia
etc.) all resulting for mutations of the nuclear transcription factor
named autoimmune regulator (AIRE) gene mapping to chr 22p."
(I am not a doctor....I say this only because thyroid disorders and
alopecia are also mentioned as symptoms)
I can't imagine finding researchers of much better caliber than those
at Cornell. They hold weekly clinics, and have numerous studies
ongoing into various types of diabetes.
For clinic information:
http://pedsendo.med.cornell.edu/diabetes/clinics.html
For research studies:
http://pedsendo.med.cornell.edu/diabetes/research.html
*Since I don't know where you live, the Cornell program is a great
resource for referrals to top-notch researchers and doctors in your
area! Try to take advantage of that by giving them a call:
For Additional Information and Appointments please contact the Cornell
program at: (212) 746-1806 or E-mail: jdc@med.cornell.edu
Please let me know if I can be of further help. I know that most
parents will do anything for their children, and you seem to be one of
them. My thoughts are with you and I sincerely hope you can find the
help your are seeking.
umiat-ga
Google Search Strategy
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