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Q: autistic child with downes syndrome ( Answered 5 out of 5 stars,   2 Comments )
Subject: autistic child with downes syndrome
Category: Health
Asked by: k868-ga
List Price: $10.00
Posted: 02 Oct 2003 06:23 PDT
Expires: 01 Nov 2003 05:23 PST
Question ID: 262155
I have a 7 yr old son who has Downs Syndrome and has recently been
diagnosed Autistic ? Any info on parents groups or absolutly any info
at all
on the two conditions together Please. We live in the uk.  Croydon.
Thank you and Good luck.
Subject: Re: autistic child with downes syndrome
Answered By: tehuti-ga on 02 Oct 2003 09:59 PDT
Rated:5 out of 5 stars
Hello k868

There is a Yahoo group with exactly the right profile:

“The Down Syndrome & Autistic Spectrum (ds-autism) listserv was
created so families, parents, and professionals interested in this
dual diagnosis could discuss issues related to medical, educational,
and family concerns in a free, and open forum” 

I have found a scientific paper from 1994 describing such a dual
The Recognition of Autism in Children with Down Syndrome -
Implications for Intervention and Some Speculations about Pathology by
P. Howlin, L. Wing, J. Gould
Developmental Medicine and Child Neurology, 1995, 37, 406-414 

The main author, Professor Patricia Howlin, is based at the Psychology
Department of St George’s Hospital Medical School. The web site of the
Surrrey Branch of the National Austistic Society mentions her name in
a list of specialists to whom parents of autistic children can turn
for diagnosis and second opinions.  The list is reasonably current, as
it was last updated on August 11, 2003.
Patricia Howlin’s contact details (tel, fax, email) on the St George’s
web site are at:
The postal address for the Department is:
Division of Psychology
Hunter Wing
Cranmer Terrace
SW17 0RE 

Disability Solutions magazine devoted a full issue to the topic of
children with Downs Syndrome plus autistic spectrum disorder.  You can
obtain the 40-page file in pdf format at (Follow the link “Volume 3,
Issue 5 & 6 to download the file).

“Down Syndrome and Autistic Spectrum Disorder: A look at what we know”
is a paper written for the Down's Syndrome Asociation newsletter by
George T Capone from the Kennedy Krieger institute. Baltimore.  You
can find it in pdf format on the web site of the Downs Syndrome
Medical Interest Group at  (scroll down to about halfway down
the page to find the link)

One mother has found that riding helps her daughter a lot:
“Stacy Beall has watched her daughter Elizabeth, who suffers from
Downs Syndrome and autism, grow thanks to therapeutic riding.
"I can't say enough good things about the program," says Elizabeth's
mother, Stacy Beall. "They individualize a program for each rider,
according to their abilities, and tune it to help the rider gain the
greatest benefit. It has really made a difference for my child." Beall
stands outside the ring, watching her daughter with obvious pride.” (Article in
Bay Weekly Online)

I thought you might be interested to read about Glen Sheppard, a
23-year-old Australian who has both Downs Syndrome and autism.  He has
published two books of poetry. You can find out more and read two of
his poems at: (Scroll down the page to find
the link to “Elvis has left the building”).

For general support, you might also wish to contact the South West
Thames Branch of the Downs Syndrome Association, which covers West &
South West London, Surrey & West Sussex.  This group might know if
there is someone near you in a similar situation. 

I hope this is the sort of information you are seeking. Please request
further clarification if required (I am away Friday-Monday).

I sincerely hope you will find the support and knowledge you need to
help your son live life to the fullest.

Search strategy:
“Downs Syndrome and autism”
“Downs Syndrome” autistics
Howlin George’s Medical
k868-ga rated this answer:5 out of 5 stars and gave an additional tip of: $5.00
Thank you so much for all the facinating info on these page's. We have
found this extreamly helpful. Not just for us but his school helper
aswell.  Thank you again. Keep up the good work.

Subject: Re: autistic child with downes syndrome
From: tehuti-ga on 15 Oct 2003 14:49 PDT
Glad to have been of some help. Thank you very much for the kind words and tip.
Subject: Re: autistic child with downes syndrome
From: k868-ga on 15 Oct 2003 16:13 PDT
You have been more help than you'll know.  Thank you once again. I'm
very new to this computer lark and also thank's to you, I have been
able to find so many wonderful link's on this. My son is very lucky
there is this info. It really has helped already. The school he's at
is reading it and show interest in a pac to help him comunicate. Bless
you. K8. x

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