I am 58 years old. I'm suffering from a peripheral neuropathy since 2
years. I do think that I am a bearer of the
Charcot Marie Tooth disease because of my high arched feet and hammer
toes. (Although all the genitical tets have been negative.) My mother
had the same problem however she stayed valid until her death at 85.
I had EMG and nerve velocites exams that showed an abnormal result. The
nerves conductions velocites seems to be reduced.I have a very high
level of Lipoprotein LP(a) 0,72 gram/liter. Is there any relation
between that and my neuropathy and if so can I reduce this level and
should I follow a low or a high protein diet? |
Request for Question Clarification by
livioflores-ga
on
05 Jun 2004 06:41 PDT
Hi!!
Can you clarify if your mother had suffered the Charcot Marie Tooth
disease or only showed the symptoms like high arched feet and hammer
toes.
Thank you.
livioflores-ga
|
Clarification of Question by
robert22-ga
on
05 Jun 2004 12:40 PDT
My mother never suffered from the Charcot-Marie-Tooth and nobody else
in my family did neither.She was physically totaly valid until her
death at 85 by Alzheimer disease. However her feet were moderately
arched and she had hammertoes.
|
Request for Question Clarification by
livioflores-ga
on
06 Jun 2004 18:17 PDT
Can you give us some info related to your cholesterol levels (total,
ldl and hdl) and other relevant results from anblood test?
Thank you.
livioflores-ga
|
Clarification of Question by
robert22-ga
on
07 Jun 2004 05:08 PDT
Hello again,
My last results (may 2004) showed a total cholesterol of 1,73 g/l. The
ldl levels were 1,05g/l and the hdl (precipitation)levels were
0,55g/l.
My triglycerids : 0,67 g/l. I am taking 800 UI of vitamin E every day
following my doctors recommendation maybe that is why my level of
vitamin E (hplc)is much above average: 21 mg/l.
I also have an extremely low level of STH (GH): 0,40 mUI/l. My
progesteron level is : 0,91 ng/ml which is above the normal limit.
All the other results are within the normal limits.
I hope this will help you to find an answer to my question.
Thank you for your help
|
Request for Question Clarification by
livioflores-ga
on
08 Jun 2004 21:11 PDT
Hi robert22!!
Due health problems with my wife I will not be able to complete the
answer until the weekend, in the meantime the question will be open to
other researchers to answer the question. If the question remains
unanswered on Friday evening I will take it again to answer it.
Thank you for your understanding.
livioflores-ga
|
Request for Question Clarification by
umiat-ga
on
09 Jun 2004 09:10 PDT
Hello, robert22!
I have looked into your question a bit, and am somewhat puzzled. You
say you have suffered from peripheral neuropathy since the age of two.
However, in a previous question, you mentioned that you were only
recently diagnosed with this condition. "I have been diagnosed with
neuropathy 3 months after taking
perindopril..."
Peripheral neuropathy can have many origins, and in some cases,
cannot be pinned down to one primary cause at all. It can be a
puzzling and uncomfortable condition.
If, in fact, you have suffered from this condition since age two,
have you ever consulted with a physician about it aside from the
recent association with perindopril? Has a doctor given you any
indication about what might be causing your neuropathy, or are you
assuming it might merely be associated with the medication? ** And
again, since you were not taking this medication and had no idea of
your lipoprotein levels as a child, can it be assumed that the origin
of your neuropathy might be due to another condition?
I am willing to provide you with comprehensive information concerning
peripheral neuropathy, its causes, possible treatments, medications
and diet, as well as any possible relation to lipoprotein levels.
Would that be of interest?
Also, has your doctor recommended any other tests, medications or
supplements to determine the origin or your neuropathy and deal with
the pain, other than a vitamin E supplement?
* Please let me know if you are interested in the comprehensive
information I have outlined as an answer.
* Also, please clarify whether your neuropathy appeared as a child, or
only three months ago.
* (Also, please be mindful that researchers can only provide
information, but not a diagnosis or medical recommendation. As a past
customer of GA, I am sure you are aware of this, but I just wanted to
reiterate that fact)
I look foward to hearing from you!
june
|
Request for Question Clarification by
umiat-ga
on
09 Jun 2004 19:11 PDT
Perhaps I have misinterpreted what you said. Do you mean you have had
the peripheral neuropathy for only two years, and that it started
"only" after taking your medication? Has your doctor related the
neuropathy to the medication? All my other previous questions still
stand as well.
|
Clarification of Question by
robert22-ga
on
10 Jun 2004 03:28 PDT
Hello,
Ofcourse what I meant was that I'm suffering from a neuropathy for a
period of two years, starting in july 2002 three months after starting
taking perindopril. This may not be the reason of my disease although
I have been considering it as a possibility. My first EMG in july 2002
being abnormal , I have had ever since other EMG test and NCV tests
confirming the abnormality. I've also had many genetical tests done
and thyroidfunctions controlled all of them were normal. I only
checked my lipoproteinlevel LP(a) six months ago for the first time
and recently redid one test. I have been fairly fit during my life
doing ski and tennis etc. I do not yet suffer by any pain but I do
realize a loss of muscles and a feeling of general weakness. I would
like to know if there may be a link between my very high level (more
than twice the highest limit) of lipoprotein (LP(a))and my neuropathy?
|
Request for Question Clarification by
livioflores-ga
on
10 Jun 2004 05:56 PDT
Hi again!!
Have you results of your glucose levels on blood, most symptoms
(except tryglicerids) lead to a diabetic condition.
Thank you.
livioflores-ga
|
Clarification of Question by
robert22-ga
on
10 Jun 2004 14:13 PDT
Hello again!
My insulin level LIA is 11 mcU/ml and my glycemy level on an empty
stomach is usually between 0,96 and 1 gr./liter.
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Clarification of Question by
robert22-ga
on
20 Jun 2004 14:27 PDT
My question is still waiting for an answer and I hope that one of You
will be able to look into my question soon.
Thank you very much
|
Request for Question Clarification by
umiat-ga
on
20 Jun 2004 15:52 PDT
Hello, robert22,
I have spent some time researching your question, as have other
researchers, and it appears that there is no information showing a
link between high lipoprotein and peripheral neuropathy.
Is there any other information we can provide you with, or another
avenue you would like us to research?
umiat
|
