Hi static8,
Thank you for your question. I'm familiar with the disease because my
brother-in-law has had it for 13 years and has participated in some of
the clinical trials and advanced experimental treatments available in
the United States and Canada.
Regarding the "leading names in this field" - Major Cancer Centers
both in the United States and Worldwide that treat Hodgkin's Disease
will have associated with them the top researchers and physicians who
are working with clinical trials, experimental medications, and
applicable drugs.
During your examination of the many resources I've provided, you'll be
able to inquire who are the recommended leading names in the field.
I'd like to direct your attention to the *Important Disclaimer* at the
bottom of this page:
"Answers and comments provided on Google Answers are general
information, and are not intended to substitute for informed
professional medical advice."
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Active Clinical Trials in the United States:
Stage IV Adult Hodgin's Lymphoma (31 results)
http://www.cancer.gov/search/ResultsClinicalTrials.aspx?protocolsearchid=1122095
Please search each clinical trial for details on the study including
contact information to the principle investigator and the particpating
study sites.
Contact Information is on each page. You'd want to confirm with your
doctor on eligiblity.
If you are interested in participating in a clinical trial, contact
your doctor for a referral or call a trial contact person listed
below. If you have questions about cancer or clinical trials, call the
Cancer Information Service at 1-800-4-CANCER (1-800-422-6237). General
information about clinical trials, including risks, benefits, and
costs, can be found on NCI's Web site.
On left side of each page in addition to the Home page, you'll see an
icon titled: Need Help? ... you can utilize any of the ways to
contact them either by:
Telephone *(The information specialsts are very helpful - I've spoken
with them many times.)
Talk with an information specialist from the NCI's Cancer Information
Service - within the United States, Monday through Friday 9:00 a.m. to
4:30 p.m. local time.
1-800-4-CANCER (1-800-422-6237) (say or press 1 for a cancer
information specialist)
TTY: 1-800-332-8615
In addition they have internal data base not accesible on the web and
they can discuss or share referral information to treatment facilities
in the United States.
For Online (LiveHelp)
Use this feature for a confidential online text chat with an NCI
information specialist - Monday through Friday 9:00 a.m. to 10:00 p.m.
U.S. Eastern Time.
Connect to LiveHelp (click on LifeHelp link)
E-mail
If you have questions or comments or are unable to find what you need
on this site, please feel free to contact us using our online contact
form
Contact Us:
http://www.cancer.gov/contact
Mail
Write to the National Cancer Institute at
NCI Public Inquiries Office
6116 Executive Boulevard
Room 3036A
Bethesda, MD 20892-8322
If You Live Outside the U.S.
Those living outside the United States may wish to contact one of the
following for cancer-related information:
International Union Against Cancer (UICC)
http://www3.uicc.org/organization/membership/directory/memb.shtml#
International Cancer Information Services
http://cis.nci.nih.gov/resources/intlist.htm
Below is a listing of organizations that serve as cancer information
sources in their host countries. These organizations offer services
similar to those of the Cancer Information Service (CIS).
You may also refer to the International Union Against Cancer (UICC), a
collaboration of international cancer-related organizations, including
research facilities, treatment centers, ministries of health, and
nonprofit cancer organizations. UICC can provide information about
resources in most countries through its list of international UICC
members and a directory of worldwide cancer-concerned organizations.
Some organizations on the UICC Web site may go by the name Cancer
Information Service. The 25 organizations listed below have been
identified as providing services similar to those of the CIS.
(There are 20 Countries listed - some with more than one area listing)
For example:
AUSTRALIA The Cancer Council Victoria
Cancer Information & Support Service
1 Rathdowne Street
Carlton
3053 Victoria, Australia
Helpline 61 3 9635 5000
Freeline 13 11 20
Fax 61 3 9635 5270
E-mail enquiries@cancervic.org.au
Web site http://www.cancervic.org.au
The Cancer Council South Australia
202 Greenhill Road
Eastwood
South Australia 5063
Helpline 13 11 20
Phone 61 8 8291 4111
Fax 61 8 8291 4122
E-mail acf@cancersa.org.au
Web site http://www.cancersa.org.au/
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United Kingdom Clinical Trials advanced stage Hodgin's Disease
Escalated BEACOPP (EORTC 20012) BEACOPP (4 cycles escalated + 4 cycles
baseline) versus ABVD (8 cycles) in stage III & IV Hodgkin's Lymphoma
EORTC 20012
http://www.ncrn.org.uk/portfolio/data.asp?ID=1416
BNLI Stanford V Protocol for a randomised phase III study of the
Stanford V regimen, compared with ABVD for the treatment of advanced
Hodgkin's disease
http://www.ncrn.org.uk/portfolio/data.asp?ID=763
ABVD or BEACOPP chemotherapy for advanced Hodgkin?s lymphoma (EORTC 20012)
http://www.cancerhelp.org.uk/trials/trials/trial.asp?freetextsearch=&searchtype=select&trial=4393&trialno=4386&spage=11&objective=0&cancer=0&stage=0&phase=0&treatment=0&location=0
Radio-labelled monoclonal antibody treatment with I-CHT25 for advanced
Hodgkin?s disease.
http://www.cancerhelp.org.uk/trials/trials/trial.asp?freetextsearch=&searchtype=select&trial=4532&trialno=2605&spage=13&objective=0&cancer=0&stage=0&phase=0&treatment=0&location=0
Stanford V chemotherapy or ABVD chemotherapy for advanced Hodgkin's disease.
http://www.cancerhelp.org.uk/trials/trials/trial.asp?freetextsearch=&searchtype=select&trial=3734&trialno=918&spage=4&objective=0&cancer=0&stage=0&phase=0&treatment=0&location=0
This trial is for people with Hodgkin's disease or non-Hodgkin's
lymphoma that is not responding to treatment, or has come back after
it was first treated. They will have been recommended to have high
dose chemotherapy and stem cell transplant.
http://www.cancerhelp.org.uk/trials/trials/trial.asp?freetextsearch=&searchtype=select&trial=4156&trialno=105&spage=9&objective=0&cancer=0&stage=0&phase=0&treatment=0&location=0
A RANDOMIZED TRIAL OF BEAM PLUS PBSCT VERSUS SINGLE AGENT HIGH-DOSE
THERAPY FOLLOWED BY BEAM PLUS PBSCT IN PATIENTS WITH RELAPSED
HODGKIN'S DISEASE
http://www.eortc.be/protoc/details.asp?protocol=20011
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The Hodgkin's Disease Page
http://www.cancerindex.org/clinks2i.htm
WorldWide list Cancer Centres and Institutes (149 links)
http://www.cancerindex.org/clinks8.htm
"The list below contains links to cancer centres and institutes that
have Web sites; remember there are a great many other dedicated cancer
centres which do not have Web sites. Inclusion on this list in no way
implies endorsement for any particular treatment centre."
===================================================
Japanese National Cancer Center
http://www.ncc.go.jp/en/nccri/
Clinical Trials Hodgkin's (41 pages)
http://search.ncc.go.jp/scripts/infobee/bin/result.cgi
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Clinical Trials in Canada
http://www.ctg.queensu.ca/trials/hematologic/default.html
The NCIC CTG is a cooperative oncology group which carries out
clinical trials in cancer therapy and supportive care across Canada
and internationally. It is one of the national programmes and networks
of the National Cancer Institute of Canada (NCIC), and is supported by
the NCIC with funds raised by the Canadian Cancer Society (CCS).
The information contained in this website is intended for use by NCIC
Clinical Trials Group members at participating centres. If you are a
cancer patient, your doctor can explain how this information applies
to you, or you can call the Cancer Information Service of the Canadian
Cancer Society at 1-888-939-3333. CancerNet also contains PDQ
(Physican Data Query) information for patients.
http://www.cancer.ca/ccs/internet/standard/0,3182,3172_37378683__langId-en,00.html
http://www.cancer.ca/ccs/internet/niw_splash/0%2C%2C3172%2C00.html
We are located at Queen's University, Kingston Ontario.
(see contact numbers top right side of page to inquire about Hodgkin's
Clinical Trials and Treatments.
==================================================
The Cancer Information Network has a list of Major Cancer Centers In
The United States - Top 10 Cancer Centers of United States and By
Geographic Locations - List of states from Alabama to Wisconsin
Please note - all of the centers treat Hodgkin's Disease and will have
a referral list of physicians and leading names in the field.
http://www.cancerlinksusa.com/centers.htm
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Hodgkin's Disease Organizations
British National Lymphoma Investigation (UK) The BNLI was formed in
1970 to coordinate medical research into the diagnosis and treatment
of lymphomas, and is involved in running clinical trials and other
research.
http://www.ctu.mrc.ac.uk/
Cure for Lymphoma Foundation (USA) a national research organisation
with a focus on lymphomas
http://cfl.healthology.com/
HUG Hodgkins United Group (Ireland) a support group for patients with
Hodgkin's and Non-Hodgkins Lymphomas, their relatives and friends.
This page is on the Irish Cancer Society web site.
http://www.irishcancer.ie/
Lymphoma Association (UK) The association provide emotional support
and information to people with lymphatic cancer and to their families,
carers and friends. The site ihas details of the national network of
support groups, telephone helpline, online-booklets etc.
http://www.lymphoma.org.uk/support/
Lymphoma Research Foundation Canada / Fondation Canadienne sur le
Lymphome (Canada) A non-profit organisation founded in 1998 with the
aim of providing support to patients and funding research. The site
contains information about the organisation, about lymphomas,
research, services etc. English and French language support.
http://www.lymphoma.ca/
Lymphoma Research Foundation of America (USA) LRFA raises money for
research and provides patient support and information. It was founded
in 1991 by a patient with NHL. The Web site includes details of
services, information about lymphoma, research grants etc.
http://www.lymphoma.org/site/pp.asp?c=bfIKIVMIG&b=36832
*****
Hodgkin's Disease Resources
Patient's information for Adult Hodgkin's Disease
http://imsdd.meb.uni-bonn.de/cancernet/200003.html
Hodgkin's Disease Coping with Cancer
http://cancer.gov/cancertopics/coping
Hodgkin's Lymphoma (Hodgkin's Disease) The site is produced by an
adult lymphoma survivor
http://www.lymphomainfo.net/hodgkins/
Hodgkin's disease (CancerHelp UK)
http://www.cancerhelp.org.uk/help/default.asp?page=4239
Hodgkin's Lymphoma - overview (MedicineNet)
http://www.medicinenet.com/hodgkins_disease/index.htm
HODGKINS - Hodgkins Disease Support Group Email discussion list
http://listserv.acor.org/archives/hodgkins.html
Hodgkins Disease Mail List - An Internet Mailing List dedicated to the
exchange of information concerning Hodgkins Disease
http://www.deltronix.com/public/hodgkins/home.htm
Physician's PDQ statement for Adult Hodgkin's Disease
http://imsdd.meb.uni-bonn.de/cancernet/100003.html
Physician's PDQ statement for Hodgkin's Disease During Pregnancy
http://imsdd.meb.uni-bonn.de/cancernet/105289.html
Hodgkin's Disease Tutorial
http://www.medsch.wisc.edu/medsch12/indexH.html
Medline Search: Hodgkin's Disease (PubMed)
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=search&db=PubMed&term=Hodgkin's%20Disease%20AND%20%28%222002%2f01%2f11%22%5bEdat]%20%3a%20%222003%2f01%2f11%22%5bEdat]%29
=================================================
An interesting article can be found on Hodgkin lymphoma (formerly
known as Hodgkin's disease) written by Dr Bernadette Birtwhistle and
Professor Barry Hancock
http://www.lymphoma.org.uk/support/Factfiles/Hodgkinlymphoma.htm
Bernadette Birtwhistle was, until recently, Clinical Research
Assistant to Professor Hancock and is now a Staff Grade in Clinical
Oncology at Weston Park Hospital, Sheffield.
Barry Hancock is Yorkshire Cancer Research Professor in Clinical
Oncology and Director of Cancer Research in Sheffield. He has always
had a major interest in Hodgkin lymphoma and in further improving the
outlook for patients with lymphoma, by clinical trials.
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Best regards,
tlspiegel |
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