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Q: chronic pancreatitis ( Answered,   0 Comments )
Question  
Subject: chronic pancreatitis
Category: Health > Conditions and Diseases
Asked by: laparents-ga
List Price: $200.00
Posted: 09 Jun 2005 12:43 PDT
Expires: 09 Jul 2005 12:43 PDT
Question ID: 531473
Our 12 year old son was diagnosed with chronic pancreatitis 3 years
ago.  As you may know, pancreatitis is very rare in children and the
cause is determined idiopathic for about 50% of the cases. 
Pancreatitis is the effect of something else, and therein lies the
problem - docotors need to find the CAUSE of the pancreatitis.  First
the doctors told us he had cystic fibrosis. The majority of diagnosed
pancreatitis is due to CF.   Then another doctor told us he did not
have CF, but had spincter oddi syndrome, and that was causing the
pancreatitis.  Yet a third doctor has told us that he believes
sphincter oddi syndrome is  a result of pancreatitis, not the cause. 
And worse yet, none of these very skilled GI specialists have been
able to do anything to lessen his pancreatitis episodes - about 6 per
year over the last 3 years.  He has a thin build to begin with, and
during the pancreatitis he can not eat for at least 2 days.  Hence, he
is experiencing weightloss problems.

1)  How do I find a endocrine pancreas specialist who may have seen similar cases.

2)  How do I find a nutritional specialist who may have experience
with this digestive problem?

thank you.

desperate parents

Request for Question Clarification by hummer-ga on 09 Jun 2005 13:55 PDT
Hi laparents, where are you located (Los Angeles??)? Thanks, hummer
Answer  
Subject: Re: chronic pancreatitis
Answered By: hummer-ga on 09 Jun 2005 16:42 PDT
 
Hi laparents,

The short answer is that you need to take your son to a major
university teaching medical center with a Pediatric Gastroenterology
Department. There, a team (not just one doctor), equipped with the
latest technology and knowledge (a perk of teaching facilities), will
evaluate your son and prepare a comprehensive course of treatment (a
nutritionist will be part of the team). The bonus will be that there
is a good chance that he will meet other children with similar
histories with whom he can commiserate and share tips.

Here are six in California (in case my clarification guess is
correct). See the link for more Pediatric Gastroenterology Divisions
in other regions of the U.S.

Ament, Marvin E. MD
U C L A Medical Center
Pediatric Gastroenterology Division
M D C C 12 - 383
10833 Le Conte Avenue
Los Angeles, California 90024-1752
(310)206-6134
---------------------
Sinatra, Frank R. MD
Women's & Children's Hospital
LA County & USC Medical Center
1240 N. Mission Road
Room L-902
Los Angeles, California 90033-0000
(323)226-5603
---------------------
Lavine, Joel E. MD
Fellowship Prog, Ped GI & Nutrition
Pediatric Gastroenterology Division
UCSD Medical Center
200 West Arbor Dr., Mail Code 8450
San Diego, California 92103-8450
(619)543-7544
---------------------
Gleghorn, Elizabeth E. MD
Children's Hospital - Oakland
Division of Pediatric Pulmonology
747 52nd Street
Oakland, California 94609-0000
(510)428-3058
---------------------
Heyman, Melvin B. MD
University of California (SF)
Pediatric Gastroenterology Division
M U 4 - East, Box 0136
500 Parnassus Avenue
San Francisco, California 94143-0136
(415)476-5892
---------------------
Kerner, John A. Jr. MD
Stanford University
Div of Pediatric Gastroenterology
Department of Pediatrics
750 Welch Road, Suite 116
Palo Alto, California 94304-0000
(650)723-5070
http://www.abpeds.com/pediatrics/pgdirsubusa.asp?Search=%2026

What is a Pediatric Gastroenterologist?
http://www.aap.org/family/WhatisPedGastroDoc.pdf

THE AMERICAN BOARD OF PEDIATRICS SUBSPECIALTY CERTIFYING EXAMINATION
CONTENT OUTLINE
SUBBOARD OF PEDIATRIC GASTROENTEROLOGY 
"The enclosed document was prepared by the American Board of
Pediatrics (ABP) Subboard of Pediatric Gastroenterology as a blueprint
for the subspecialty certifying examination. Each ABP Subboard
prepares a similar document as a first step in preparing an
examination. The purpose is to define the knowledge a certified
subspecialist should be expected to demonstrate on an examination
consisting of multiple choice questions."
D - Pancreatitis
Understand the causes of acute pancreatitis in childhood
Be familiar with the biochemical abnormalities in blood and urine
associated with pancreatitis
Know how to identify acute and chronic pancreatitis on radiographic
studies (eg, computed tomography, ultrasonography, ERCP)
Recognize the clinical manifestations of acute pancreatitis
Understand the causes of pancreatic pseudocyst
Know the natural history of a pancreatic pseudocyst
Understand the causes of an increased serum amylase concentration
Plan appropriate management of acute pancreatitis (eg, medical, surgical)
Plan appropriate management of pancreatic pseudocyst (eg, medical, surgical)
Know the drugs that cause pancreatitis
Be aware of the risk factors associated with acute pancreatitis (eg,
sepsis, hyperlipidemia, cystic fibrosis, trauma)
Recognize familial pancreatitis by history, biochemical, and radiologic evaluation
Be aware of the relationship between familial pancreatitis and malignancy
http://www.e-gastroped.com.br/abp02.htm


Additional Links of Interest:

The North American Society for Pediatric Gastroenterology, Hepatology
and Nutrition (NASPGHAN)
"NASPGHAN strives to improve the care of infants, children and
adolescents with digestive disorders by promoting advances in clinical
care, research and education. Pediatric gastroenterologists specialize
in the care of children with chronic abdominal pain, diarrhea,
constipation, vomiting, bleeding from the GI tract, inflammatory bowel
disease, liver diseases, diseases of the pancreas, poor weight gain
and nutritional problems.  Pediatric gastroenterologists specialize in
gastroesophageal reflux (GER), peptic ulcers, H. pylori, celiac
disease, Crohn?s disease, ulcerative colitis, Hirschsprung?s disease,
cyclic vomiting, polyps, gallstones, hepatitis, biliary atresia,
jaundice, pancreatitis, lactose malabsorption, failure to thrive and
other common and rare disorders.  Most pediatric gastroenterologists
perform endoscopy, colonoscopy, esophageal pH probe studies,
esophageal and rectal manometry and liver biopsies.
http://www.naspgn.org/sub/aboutNASPGHAN.asp

Locate a Pediatric Gastroenterologist
http://www.naspgn.org/aspModules/PublicLocateDoctor/PublicLocateDoctor.asp

A Portrait of Childhood Pancreatitis
http://www.pancreasfoundation.org/live/index.shtml

Just For Kids
http://www.pancreasfoundation.org/live/kids.htm

Ideas That Help
http://www.pancreasfoundation.org/live/ideas.htm

Support Group
http://www.pancreasfoundation.org/live/supportgroups.htm

Pancreatitis Association International
http://www.pancassociation.org/

University of Pittsburgh Pancreatic Disease website
http://pancreas.org/

Overview of Pediatric Pancreatitis
eMedicine Specialties  > Pediatrics  >  Gastroenterology
Pancreatitis and Pancreatic Pseudocyst
http://www.emedicine.com/ped/topic3014.htm

Chronic Pancreatitis: Diagnosis, Classification, and New Genetic
Developments [over 2 MB]
http://pancreas.org/assets/pdfs/GastroCP.pdf

I sincerely hope this helps you to find some relief for your son. If
you have any questions, please post a clarification request *before*
closing/rating my answer and I'll be happy to reply.

Thank you and best of luck,
hummer

Google Search Terms Used:

pediatric pancreatitis
pediatric gastroenterologist
pediatric gastroenterology 
pediatric gastroenterology pancreatitis
pediatric endocrinology pancreatitis
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