Hi Porkj,
?Lymphangiomas are benign tumors that are composed primarily of
lymphatic vessels. They are classified into three pathologic groups:
the lymphangioma simplex, the cavernous lymphangioma, and the cystic
lymphangioma or cystic hygroma (1). Cystic lymphangiomas most commonly
affect infants. Occurance in adults is rare, with fewer than 90 cases
reported in the literature.?
http://journals.tubitak.gov.tr/medical/issues/sag-98-28-5/sag-28-5-21-97026.pdf
With fewer than 90 reported cases in adults, it is quite difficult to
find specialists in this area! While I searched, I came across several
people asking for doctors to treat this disorder. Keep in mind that
you may have to visit several doctors until you find one who really
knows this topic. Since you didn?t mention the part of the body that
is afflicted, some of the doctors on the list may or may not treat any
location. Generally speaking, surgery or otolaryngology departments of
large hospitals have doctors who have access to the latest medical
information.
It also was not clear to me if you wanted imaging specialists or
doctors who can treat Lymphangioma simplex. In any case, I have found
you a group of radiologists that do specialize in lymphangioma
imaging.
Benson Radiology
Head Office:
229 Melbourne Street
North Adelaide, S.A. 5006
Phone: (08) 8239 0550
Fax: (08) 8239 1150
Web: www.bensonradiology.com.au
Staff:
Dr P J Anderson
Dr A J Smith
Dr A B Utturkar
Dr R C Edwards
Dr B S Ganguly
Dr B E Clark
Dr P B Hopkins
Dr N B Davidson
Dr J H Buckley
Dr W K Loftus
Dr S F Hobbs
Dr J E Copley
Dr R F Hannan
Dr R D Hoile
Dr Nick H P Tan
Dr J I Robinson
Dr M W J Hayward
Dr J R Nelson
Dr D A Donovan
Dr A C Biggs
Dr F Voyvodic
Dr E M Y Yap
Dr S L Bau
See Page 9
http://www.bensonradiology.com.au/downloads/PDF/newsletters/March2002.pdf
===================
Doctors/Specialists
===================
Please keep in mind that lymphangioma simplex is very rare. I have
found doctors who are knowledgeable in the field, but I can?t verify
that they are taking new patients. If you contact any of the doctors
below, and they do NOT treat lymphangioma simplex, please ask who they
would recommend. Be sure and tell them where on the body the
lymphangioma is located! I feel confident you will find at least one
or two below who can assist you.
Australia
=========
Dr David Lord
Radiology Department
Locked Bag 4001
Westmead NSW 2145
Sydney Australia
Email: DavidL5@chw.edu.au
Also:
M.J. da Cruz,
Department of Surgery,
Westmead Hospital,
Westmead, New South Wales 2145
Email: melvilled@westgate.wh.usyd.edu.au
=========================================
The Lymphoedema Association of Australia
94 Cambridge Terrace, MALVERN, S.A. 5061, AUSTRALIA
Fax: 61+(8) 8271-8776; Tel: 61+(8) 8271-2198
e-mail: casley@internode.on.net
(Because lymphangioma is a related disease, this organization may be
able to help you)
If you click ?List of Therapists? found near the top of the screen,
you will find doctors in your area who can help you.
http://www.lymphoedema.org.au/
=========================================================================
If none of the above work out, and you want to find a physician in
Australia, this site lists all the hospitals in Australia. Click on
areas closest to you and select some hospitals. Call and ask if they
have doctors that treat Lymphangioma simplex.
http://www.nurses.info/hospitals_australia_nz.htm
======
Spain
======
Dr. Antonio Berenguer
Department of Urology
Hospital Universitario de Getafe
Crta. Toledo km 12.500
28905, Getafe, Madrid, Spain
Fax: + + (34) (91) 683-3271
E-mail: luisllanes@airtel.net
Alternate contact info for Dr. Berenquer:
Antonio Berenguer
Servicio de Epidemiología y registro del Cáncer
Instituto Catalán de Oncología
Barcelona, Spain
toniberenguer@ico.scs.es
http://www.brazjurol.com.br/march_april_2002/Llanes_138_139.htm
http://www.iarc.fr/epic/centers/spain.html
=======
Turkey
=======
Division of Thoracic Surgery
Ankara Numune Education and Research Hospital, Ankara, Turkey
Corresponding author. Asagiövecler Mh. 79.Sk. 8/3, Dikmen ? Cankaya,
06460 Ankara, Turkey. Tel.: +90-312-482-7279; mobile:
+90-532-445-3938; fax: +90-312-310-3460
erseyda@yahoo.com
===
USA
===
Colorado
========
University of Colorado
Department of Otolaryngology
303-315-7988
Clinic at AOP: 720-848-2820
Clinic at TCH 303-764-8501
www.uchsc.edu/otolaryngology
Contact information:
4200 E. 9th Ave., B205
Denver, CO 80203
(303) 315-7988
Fax: (303) 315-8787
elizabeth.hardy@uchsc.edu
Peggy E. Kelley, M.D., F.A.C.S.
Assistant Professor
Department of Otolaryngology
University of Colorado Health Science Center
Appointments: (303) 764-8501
See page 4
http://www.uchsc.edu/otolaryngology/Examiner/ENTspring2004.pdf
Ohio
=====
The Cleveland Clinic Foundation
Orhan Konez, MD
Director, Vascular Anomalies Program
Vascular and Interventional Radiology
The Cleveland Clinic Foundation
9500 Euclid Avenue
Cleveland, Ohio 44195(216) 445-0753(216) 445-1492konezo@ccf.org
http://www.birthmarks.us
Here is a paper by Dr. Konez
http://www.emedicine.com/radio/topic761.htm
?The Vascular Anomalies Center at The Children?s Hospital at The
Cleveland Clinic offers precise diagnosis and innovative treatment for
children with these lesions, which often are complex and difficult to
manage.
The Clinic?s vascular anomalies team consists of an interventional
radiologist, pediatric general surgeon, pediatric plastic surgeon,
pediatric dermatologist, pediatric radiologist, vascular surgeon and
pediatric hematologist. They consult with colleagues in
otolaryngology, head and neck surgery, orthopaedics, urology or
neurosurgery as needed.
Correct diagnosis and treatment are crucial. ?More than half of all
children with vascular anomalies are misdiagnosed, and many are
undertreated or overtreated,? notes Cleveland Clinic radiologist Orhan
Konez, M.D., one of a handful of U.S. interventional radiologists
specializing in vascular anomalies.
The first step evaluating patients involves a history, physical and
diagnostic imaging. Dr. Konez uses MRI and MR angiography for the
diagnosis of vascular anomalies, and has pioneered the use of CT
angiography to aid in diagnosis.
The most common vascular anomalies treated in the center are
hemangiomas, venous and arteriovenous malformations, and lymphatic
malformations. Some malformation, like capillary hemangiomas, go away
on their own when the child is between 7 and 10 years. Others, like
port-wine stains, should be treated because they may be associated
with underlying disease.?
http://www.clevelandclinic.org/plastics/surgery/ped_conditions.htm
New York
=========
Dr. Milton Waner
Milton Waner, MD, an internationally recognized expert and a pioneer
in the treatment of hemangiomas and vascular malformations, has joined
Beth Israel Medical Center
First Avenue at 16th Street
212-420-2000
http://www.wehealny.org/patients/bimc_description.html
Additional Phone numbers
http://www.wehealny.org/patients/bimc_telephonenumbers1.html
http://www.wehealny.org/services/vascular_Birthmarks/
http://newyorkmetro.com/nymetro/health/bestdoctors/features/9267/index2.html
Additionally, you may find this past Google Answers question/answer useful:
http://answers.google.com/answers/threadview?id=518269
This site may give you some assistance and information:
Please Note: Additional information on this disease may be available
from the Genetic and Rare Diseases Information Center (GARD).
Information specialists can provide for free assistance in obtaining
the information you need. GARD is supported by the Office of Rare
Diseases in partnership with the National Human Genome Research
Institute, both of the National Institutes of Health. GARD can be
reached at 888-205-2311, 888-205-3223 (TTY), or by e-mail
GARDinfo@nih.gov.
http://ord.aspensys.com/asp/diseases/diseaseinfo.asp?ID=439
Canada
=======
Canadian Vascular Birthmarks Clinic
Dr. Alex Brothers. Doctor Brothers is the director of a Vascular
Birthmarks Clinic in Alberta, Canada and is treating hemangiomas, port
wine stains and other vascular birthmarks and tumors. Or, contact the
Nurse Coordinator, Marg Sletten, at Alberta Children?s Hospital
Vascular Birthmarks Clinic (403) 678-8778.
http://www.canadianvascularbirthmarks.com
=============================================================
You might be interested in participating in this NCHPEG/Genetic Alliance site:
http://www.nchpeg.org/SFGC_Survey/Survey.asp
AJ Bear
http://olympics.com.au/default.asp?pg=home&spg=display&articleid=4905
I hope this has helped you locate a physician. Please request an
Answer Clarification, if you need further help on this question.
Sincerely, Crabcakes
Search Terms
============
Specialists + Australia + lymphangioma
Lymphangioma simplex + physicians |
