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Q: Nursing homes or care providers for medically fragile children - Ohio area ( No Answer,   7 Comments )
Question  
Subject: Nursing homes or care providers for medically fragile children - Ohio area
Category: Health > Children
Asked by: forlife-ga
List Price: $25.00
Posted: 27 Sep 2005 15:35 PDT
Expires: 27 Oct 2005 15:35 PDT
Question ID: 573454
I'm trying to assist a family with a listing of nursing homes or individual
providers, preferrably in the Ohio area, who can care for a severely
brain-injured child (22 months) who is on a ventilator. Child *must*
be moved from hospital in the next few days and prior arrangements
have fallen through.  At least 112 hours per week nursing care needed
(expenses covered by Medicare).  I'm experienced with Google searches,
but I'm not finding enough -- any ideas?  Many, many thanks.
Answer  
There is no answer at this time.

Comments  
Subject: Re: Nursing homes or care providers for medically fragile children - Ohio area
From: crabcakes-ga on 27 Sep 2005 17:41 PDT
 
This site may have some useful information:
http://www.biaoh.org/linksnational.html

Would this family consider in home skilled nursing care? Have they
spoken to the social worked employed by the hospital? Social workers
usually know about local facilities.

Regards, Crabcakes
Subject: Re: Nursing homes or care providers for medically fragile children - Ohio area
From: forlife-ga on 28 Sep 2005 19:59 PDT
 
Thank you for your comment and link, which may provide a good lead. 
Yes, skilled nursing care is fine (RN, LPNs needed) but it needs to be
in a foster home, probably one licensed for medically fragile
children.  In this case, various people have been involved but the
amazing bottom line is that no suitable place has been found. I'm
surprised that I am unable to locate a list of facilities or agencies
that do this, (though perhaps the good news is that this is rare
enough that it's not yet organized.)  Continue to appreciate your
work.
Subject: Re: Nursing homes or care providers for medically fragile children - Ohio area
From: umiat-ga on 29 Sep 2005 09:39 PDT
 
Hello, for-life-ga!

Here are a few suggestions. If they work, please let me know and I
will post them as an answer to your question. I hesitate to do so
unless I know they are of some use.

==

Some links from the Cincinnati Children's hospital:

"For many children and young adults with significant chronic illness,
home health care is essential. The Center for Infants and Children
with Special Needs at Cincinnati Children's Hospital Medical Center
offers the list of resources below to help families."
http://www.cincinnatichildrens.org/svc/alpha/c/special-needs/resources/home-health.htm?view=content


From the hospital website:

Brain Injury - "Cincinnati Children's Hospital Medical Center provides
support for patients and families through the Pediatric Brain Injury
Support Group. For more information about the Pediatric Brain Injury
Support Group, please contact Jennie Phelps, 513-636-7464."
http://www.cincinnatichildrens.org/visit/support/groups/brain-injury.htm

==

University Hospitals Health System
http://cleveland.careerboard.com/cgi-bin/a/viewcompanyprofile.cgi?companyid=19429

"University Hospitals Health System Home Care Services is a provider
of home health care and personal care services throughout Cleveland
and in ten counties in Northeast Ohio. With staffing available on a
24-hour basis, UHHS Home Care Services makes it easy for patients to
be transitioned from a hospital or alternate-care facility to home.
UHHS Home Care Services provides comprehensive home health and
personal care services, including the following: skilled nursing
services, home infusion therapy, pediatric services, women's health
services, physical therapy, occupational therapy, speech therapy,
medical social services, private duty services, home care aides,
homemakers/companions, mental health and aging services, nutritional
counseling, oncology services and wound care."

For more information, please call UHHS Home Care Services at
216-844-HOME (4663) or toll-free at 1-800-552-8442.

University Hospitals Health System 
Home Care Services 
4901 Galaxy Parkway, Ste. L
Warrensville Hts., OH 44128
216-844-4663 or 1-800-552-8442
www.uhhs.com 


===

Call for Referral Information:
 

Have you tried the Brain Injury Association of Ohio?
http://www.biaoh.org/

"The CSN's primary goal is to link individuals with brain injury and
their families to existing services and supports.  Individuals in the
remaining Ohio counties may call our Helpline for assistance:
1-866-644-6242.

==

Try calling Southern Ohio Medical Center Pediatric Division for referrals:
http://www.somc.org/pages/programs/p-t/pediatrics.htm

SOMC Rehabilitation Services
1202 18th St.
Portsmouth, OH 45662
TEL (740) 356-7438
Subject: Re: Nursing homes or care providers for medically fragile children - Ohio area
From: umiat-ga on 29 Sep 2005 09:44 PDT
 
Would it help to call Project Star?
http://www.amazingkids.org/ps_01.asp

It is in the Pennsylvania are but it might be a good reference:

"The Children's Institute, 6301 Northumberland St., Squirrel Hill,
412-420-2400, www.amazingkids.org. Provides recovery, rehabilitation
and education services for children who are recovering from injury or
illness or who have special needs. Includes 22-bed inpatient pediatric
unit and 17-bed inpatient unit for Prader-Willi Syndrome/Behavioral
Disorders Program. Operates Project STAR, an adoption, foster care and
family preservation program for children with special needs.
Outpatient programs and day school serve 224 children with
neurological impairment or cerebral palsy. Offers outpatient pediatric
therapy at satellite sites in Wexford, Monroeville and Green Tree."
http://www.post-gazette.com/pg/04143/320076.stm
Subject: Re: Nursing homes or care providers for medically fragile children - Ohio area
From: forlife-ga on 29 Sep 2005 20:56 PDT
 
Thank you umiat-ga for your kind assistance and good sleuthing.  These
references may work -- I can't check them right now but I shall do so;
they certainly represent solid work.  Very grateful for your help.
Subject: Re: Nursing homes or care providers for medically fragile children - Ohio area
From: kaffer-ga on 14 Oct 2005 17:02 PDT
 
This child is Part C eligible and should have a service coordinator
assigned.  The website for Ohio's Help Me Grow System is
www.ohiohelpmegrow.org also the Ohio Department of Job and Family
Services might be helpful too, they administer the Ohio Home Care
Waiver.
Subject: Re: Nursing homes or care providers for medically fragile children - Ohio area
From: mom2many-ga on 25 Nov 2005 13:23 PST
 
are you still looking???

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