Hi toby9,
You've posted a very interesting, heartfelt, and challenging question
and I dearly hope I can be of some help. I do not find it hard to
believe that your daughter is experiencing the symptoms as described
because I have seen for myself the disturbing emergence of the Botfly
larvae in cattle and have been aware that there is a human version of
this miserable condition. This is not to say that it is likely that
your daughter is infested with Myiasis Dermatobia hominis (human
Botfly) (the emerging larvae do not resemble rice), but I just want
to set your mind at ease to let you know that I sincerely understand
the horror of your daughter's situation and why you are so anxious to
find someone who can help.
"Myiasis is the invasion of living tissue or organs by the immature
stage (maggots) of flies."
http://medent.usyd.edu.au/fact/myiasis.html
In researching your question, it became clear that diagnosing
parasitic diseases is often difficult at best and it's not unusual
that three or more evaluations are needed before finding the culprit
(due in part to various life cycles). For me, I think your daughter
needs to be seen by a group of specialists who will work together,
such as a dermatologist, psychiatrist, entomologist and
parasitologist, to rule out a number of maladies through various means
such as, skin scrapings, blood, chemistry, and thyroid test, rather
than just one specialist. The number one clinic in the country is the
National Institutes of Health Parasitology Unit in Maryland (the NIH
is usually by referral only but calling them would definitely be a
good place to start or perhaps your daughter's physician could try to
go that route).
1. National Institutes of Health, Clinical Parasitology Unit
* Klion, Amy , BA MD
Staff Physician, Clinical Parasitology Unit
Laboratory of Parasitic Diseases, National Institutes of Health
Lab. of Parasitic Diseases
Bldg. 4, Rm. 126
Bethesda, MD 20892
United States
Phone: (301) 435-8903
Fax: (301) 480-3757
Internet: aklion@nih.gov
Hours Available: Monday - Friday, 9:00 am - 5:00 pm by appointment.
Services Offered: Diagnosis and treatment of parasitic diseases.
Laboratory facilities available.
http://www.astmh.org/clinicians/clinics.cfm
Nash, Theodore E., MD
Head, Gastrointestinal Parasites Section
Laboratory of Parasitic Diseases NIAID/NIH
9000 Rockville Pike
Bldg 4 Room B1-06
Bethesda, MD 20892
United States
Phone: (301) 496-6920
Fax: (301) 402-2689
Internet: tnash@niaid.nih.gov
"Services Offered: A member of a group of physicians based in the
Laboratory of Parasitic Diseases diagnosing, studying and treating a
variety of parasitic or possibly parasitic diseases. These include but
are not limited to schistosomiasis, filariasis, strongyloidiasis,
cysticercosis, leishmaniasis, Chagas' disease, malaria, echinococcus
disease, giardiasis, amebiasis and other gastrointestinal parasites.
The National Institutes of Health is a research institution . Patients
are referred by their physicans and are required to meet protocol
guidelines. Selected patients are then entered into research
protocols."
http://www.astmh.org/clinicians/clinics.cfm
2. Ohio State University
Dr. Peter W. Pappas:
Professor and Chairperson, Department of Zoology,
The Ohio State University. 1735 Neil Avenue, Columbus, OH 43210-1293
http://www.cdfound.to.it/html/cont.htm
Declaration of Peter W. Pappas, Ph.D.
http://www.quackwatch.org/01QuackeryRelatedTopics/Cancer/clarkaff/pappas.html
Dr. Pappas' website:
http://www.biosci.ohio-state.edu/~parasite/home.html
3. McGill University Centre for Tropical Diseases
MacLean, J. Dick , MD FRCPC DCMT (Lond)
Director
McGill University Centre for Tropical Diseases, Montreal General Hospital
Associates: Brian Ward, MD; Laurence Green, MD, FRCPC; Joyce
Pickering, MD, FRCPC; Michael Libman, MD, FRCPC; Chris Greenaway, MD
FRCPC
Natl Reference Centre for Parasitology
1650 Cedar Avenue, Room D7-153
Montreal, QC H3G 1A4
Canada
Phone: (514) 937-6011 ext 3872
Fax: (514) 933-9385
Internet: dick.maclean@mcgill.ca; Website: http://www.medicine.mcgill.ca/tropmed
Hours Available: MondayFriday, 8:00 am 5:00 pm; on call rest of time.
"Services Offered: Full parasitology laboratory, National Reference
Centre for Parasitology, all vaccinations, full clinical tropical
disease center with wide consultation facility within McGill
University teaching hospital system."
http://www.astmh.org/clinicians/clinics.cfm
McGill University Centre for Tropical Diseases
National Reference Centre for Parasitology
http://www.medicine.mcgill.ca/tropmed/txt/national.htm
4. Parasitology Center Inc.
Omar Amin
Parasitology Center, Inc. (PCI)
903 S. Rural Rd. #101-318
Tempe AZ 85281
omaramin@aol.com
Work Phone Number: (480) 767-2522
Fax Number: (480) 767-5855
http://www.parasitetesting.com/contactinformation/
Amin, Omar M., PhD
Parasitology Center, Inc.
903 S. Rural Rd., #101-318
Tempe, AZ 85281
United States
Phone: (480) 767-2522
Fax: (480) 767-5855
Internet: omaramin@aol.com; Website: www.parasitetesting.com
Hours Available: Monday-Thursday, 9:00 am - 3:00 pm.
Services Offered: Diagnosis of and consultations re: gastrointestinal
and other parasitic diseases. Mailable kits available for collection
of fecal samples in all continents; call Alpha-Tec at 800-221-6058 for
kits. We work most closely with gastrointestinal parasitic diseases
and skin disorders."
http://www.astmh.org/clinicians/clinics.cfm
"Dr. Omar, M. Amin, Ph.D., founder of PCI, is a Professor of
Parasitology. He is a nationally and internationally recognized
authority in the field with over 140 major articles/books published in
American and foreign professional journals on human and animal
parasites from North America, North Africa, Peru, Persian Gulf, Kenya,
Czech Republic, Russia, Inner Mongolia (China), Thailand, Taiwan, and
Vietnam. Dr. Amin has conducted international parasitology workshops
including a recent one in the Persian Gulf as a Fulbright Scholar and
had received many other honors, awards and Parasitology research
grants. He has authored a 5-part educational video series on
"Parasitic Infections of Humans, Diagnosis and Pathology" produced by
the Center for Improvement of Human Functioning International of
Wichita, Kansas."
http://www.parasitetesting.com/companyhistory/
Can I get tested for parasites at PCI?
"Yes. Anyone from anywhere in the world can be tested for parasites
through our mailable kit where you collect the specimen. It will
normally take 2 to 5 working days from the time we receive the
specimen to get the results back. Anyone can send a specimen to be
tested but results need to be sent to a health care professional, such
as physicians, chiropractors, etc."
http://www.parasitetesting.com/faqs/
5. The American Society of Tropical Medicine and Hygiene
I've searched the ASTMH website and have come up with a list of 12
clinics which mention diagnosis rather than just immunizations for
travel, and most are associated with major, well-known medical
clinics. This is by no means all of the clinics on their website and
you might want to browse through it as well using the pull-down menu.
"The following is a list of physicians who offer clinical consultative
service in Tropical Medicine, Medical Parasitology, and Travelers'
Health. The list does not imply endorsement, or verification of
credentials, or expertise of those listed.
An asterisk ( * ) preceding a name in this directory designates those
individuals who have successfully completed the certification process
and have received the Certificate of Knowledge in Clinical and
Tropical Medicine and Traveler's Health.
To be included in the directory, individuals must be a member of ASTMH
and its clinical subgroup, ACCTMTH."
http://www.astmh.org/clinicians/clinics.cfm
MASSACHUSETTS
* Ryan, Edward T., MD DTM&H
Director, Trop. and Geo. Med. and Travelers' Advice and Imm. Ctr.
Division of Infectious Diseases Massachusetts General Hospital
Associates: Practice of 5 physicians and 3 nurses.
Founders House 8
Massachusetts General Hospital
Boston, MA 02114
United States
Phone: Patients/Appointments: (617) 724-1934
Fax: (617) 726-7653
Internet: ETRyan@partners.org
Hours Available: Monday, 1:00 pm - 8:30 pm; Tuesday/Wednesday., 8:30
am - 4:30 pm; Thursday/Friday, 8:30 am - 1:00 pm and by appointment.
Services Offered: Full international medicine, travelers' health and
immunization center (including YF). Full tropical and geographic
medicine clinic. Full parasitology, bacteriology, virology, fungal and
serology laboratories.
* Marcus, Leonard C., VMD, MD
Travelers Health and Immunization Services
148 Highland Ave.
Newton, MA 02465-2510
United States
Phone: (617) 527-4003
Fax: (617) 964-6111
Internet: www.travelmedicalcare.com
Hours Available: MondayFriday, 9:00 am 4:00 pm
Services Offered: Pre- and post-travel medical consultation,
parasitology, tropical medicine, zoonoses (diseases transmitted from
animals to people), all immunizations including YF. Specialized
consultation for outdoor adventure and for business and executive
travelers. Parasite identification laboratory.
WASHINGTON
McMullen, Russell , MD
UW Travel and Tropical Medicine Service University of Washington School of Med.
University of Washington Medical Center
Box 356123
Seattle, WA 98195-6123
United States
Phone: (206) 598-6205
Fax: (206) 598-4569
Internet: mcmullen@u.washington.edu
Hours Available: 24 hours/day, 7 days/week through Emergency Department if needed.
Services Offered: Medical care, laboratory diagnosis, immunizations.
Routine and travel immunizations including YF; diagnosis and treatment
of parasitic and tropical diseases; PhD parasitologist consultation
through university clinic, micro lab; special treatment protocols for
parasitic infections available.
NEW YORK
Tanowitz, Herbert , MD
Professor of Pathology and Medicine
Albert Einstein College of Medicine
Associates: Dr. Murray Wittner, Dr. Louis M. Weiss
1300 Morris Park Ave.
Bronx, NY 10461
United States
Phone: (718) 430-3342
Fax: (718) 430-8543
Internet: tanowitz@aecom.yu.edu
Hours Available: MondayFriday, 9:00 am 5:00 pm, by appointment.
Services Offered: Immunizations, including YF, tropical medicine and
parasitology consultation. Complete parasitology lab including
immunologic tests for parasites.
NEW JERSEY
* Abter, Elfatih , MD FACP
Director
Newark Beth Israel Hospital The Trip Center
201 Lyons Ave. at Osborne Place
Suite G3
Newark, NJ 07112
United States
Phone: (973) 926-4909
Fax: (973) 926-8182
Internet: eabter@sbhcs.com
Hours Available: Monday - Friday, 9:00 am - 5:00 pm. By appointment only.
Services Offered: Clinical tropical medicine; consultation for
parasitic and tropical diseases; Yellow Fever Certificates; required
and recommended immunizations for travel; travel medicine; pre-travel
and post-travel evaluation and treatment; counseling for healthy and
safe travel. Board certification: Internal Medicine and Infectious
Diseases.
* Alcid, David V., MD
UMDNJ-Robert Wood Johnson Medical School
Clinical Academic Bldg.
125 Paterson Street
New Brunswick, NJ 08901
United States
Phone: (732) 235-7060
Fax: (732) 235-7951
Hours Available: Tuesday, 9:00 am - 5:00 pm; Wednesday, 8:00 am -
12:00 pm; Thursday, 9:00 am - 12:00 pm. Emergencies seen as required.
Services Offered: Diagnosis and treatment of tropical and parasitic
diseases. Pre-travel counseling and immunization, YF, plague, JE.
Parasitology laboratory on-site.
Majlessi, Hojabr F., MD FACP FIAC FRSH
Director of Laboratories and Continuing Medical Education
Kessler Memorial Hospital
600 S. White Horse Pike
Hammonton, NJ 08037
United States
Phone: (609) 561-6700, X5221
Fax: (609) 561-5447
Hours Available: Monday - Friday, 9:00 am - 4:00 pm, by appointment only.
Services Offered: Pre-travel and post-travel counseling and laboratory
tests. Health education for tropics. Examination of slides and
histological specimens of parasitic diseases.
CALIFORNIA
Vinetz, Joseph M., MD
Associate Professor
UCSD Dept of Medicine, MC 0640
9500 Gilman Drive
La Jolla, CA 92093
United States
Phone: (858) 534-6010
Fax: (858) 534-6020
Internet: jvinetz@ucsd.edu
Hours Available: Weekly on Wednesdays, 24 hrs for acute illnesses.
Services Offered: Pre-travel consultation; immunizations, including
Yellow Fever; post-travel follow-up; tertiary referral center by
physician referral only. Diagnostic capabilities include parasitology,
and full range of arbovirus, zoonotic bacterial and viral agents.
Turner, Jerrold A., MD DTM&H
Turner Parasitology (Diagnostic Parasitology Laboratory Services)
519 W. Carson St., #104
Carson, CA 90745
United States
Phone: (310) 212-6559
Fax: (310) 212-7367
Internet: jturner@ucla.edu
Hours Available: Hours by appointment.
Services Offered: Specialized laboratory for the diagnosis of
parasitic disease. Specimen collection kits are provided for post paid
mailing by the patient.
WASHINGTON
* Sanford, Christopher , MD DTMH
Co-Director, Hall Health Travel Clinic U of Washington
Hall Health Primary Care Center
Associates: Elaine C. Jong, MD
Univ of Washington
Box 354410
Seattle, WA 98195-4410
United States
Phone: (206) 616-2495 (appts)
Fax: (206) 685-1853
Internet: travel@u.washington.edu
Hours Available: Monday-Friday, 8:00 am -5:00 pm.
Services Offered: Immunizations including YF, JE, Hep A. Diagnosis and
treatment of parasitic and tropical diseases. On-site laboratory, with
referral to proximate university hospital PhD parasitologist. On-site
pharmacy, specializing in travel medications and adjuncts.
WYOMING
Little, James R., MD FAAP
Jackson Hole Travel and Tropical Medicine
Associates: David R. Shlim, MD
557 East Broadway
P.O. Box 1029
Jackson, WY 83001
United States
Phone: (307) 733-4627 Office
Fax: (307) 733-5184
Internet: jlittle@wyoming.com
Hours Available: Monday-Friday, 9:00 am - 4:00 pm by appointment.
Services Offered: Pre-travel consultations and all immunizations,
including YF. Post-travel consultations and evaluations for parasitic
and tropical diseases.
Shlim, David R., MD
Medical Director
Jackson Hole Travel and Tropical Medicine
Associates: James R. Little, MD FAAP
557 East Broadway
P.O. Box 1029
Jackson, WY 83001
United States
Phone: (307) 733-4627
Fax: (307) 734-6235
Internet: drshlim@wyoming.com
Hours Available: Monday-Friday, 9:00 am - 4:00 pm by appointment.
Services Offered: Pre-travel consultations and all immunizations,
including YF. Post-travel consultations and evaluations for parasitic
and tropical diseases.
6.. University of California at Davis
I agree with umiat about UC Davis and wholeheartedly encourage you to
at least consider them.
Entomological Services
The Center for Biosystematics, University of California, Davis, has
professional entomologists and parasitologists who are trained to
evaluate specimens of the kind needed to determine whether a true
insect or other kind of infestation is present, or not, in cases of
suspected delusional parasitosis. This service is available for a per
sample fee of $120.
For more information on this service contact:
Center for Biosystematics
c/o Department of Entomology
University of California
One Shields Ave.
Davis, CA 95616
Email: bmuseum@ucdavis.edu
http://delusion.ucdavis.edu/
Additional Links of Interest
Merck Manual: Infections: Parasitic Infections
"A doctor who suspects that a person may have a parasitic infection
may take samples of blood, stool, or urine for laboratory analysis.
The doctor may also take a sample of tissue that may contain the
parasite. Repeated sample collections and examinations may be
necessary to find the parasite."
http://www.merck.com/mmhe/sec17/ch196/ch196a.html
Parasitic Infections
http://www.healthcyclopedia.com/infectious-diseases/parasitic.html
Atlas of Medical Parasitology
http://www.cdfound.to.it/HTML/atlas.htm
Cutaneous Larva Migrans
http://www.emedicine.com/ped/topic1278.htm
Scabies (mites)
http://www.emedicine.com/PED/topic2047.htm
General Information
Diagnosis of Parasitic Diseases
http://www.cdc.gov/ncidod/dpd/public/geninfo_diagnosis_diseases.htm
Parasitic Disease Information Alphabetical Listing
http://www.cdc.gov/ncidod/dpd/parasites/listing.htm
Parasites and Parasitogical Resources
"This site contains over 550 images of more than 180 species of
parasites, as well as information about the "biology" of many of these
parasitic species."
http://www.biosci.ohio-state.edu/~parasite/home.html
Although difficult, your question has been interesting to research and
I hope it enables you to find just what you are looking for. Don't
forget to tell your daughter to collect some samples the next time she
sees some "rice". Not only can they be invaluable evidence for the
clinician but she can also put some in a jar and see what they turn
into. If you have any questions, please post a clarification request
and wait for me to respond before closing/rating my answer.
Thank you,
hummer
I spent much of my time following links that I found on the many
parasitology websites. Some of the Google search terms that I used in
many combinations were parasites parasitogical resources parasitic
disease diseases diagnosis medical parasitology infections tropical
hospital university specialists human testing. |