You didn't say if your family had the assistance of hospice, but
linking with your local hospice/kaleidscope kids agencies would be a
good start. Even people that don't choose to use the services of a
hospice organization use their websites for information on caregiving.
You could also post/link/associate with your nearest University and
Childrens Cancer Centers. (Many Children's cancer centers treat young
adults) These things tend to spread by word of "mouse"... if you
start locally, likely it will spread nationally. Build quality
content and other groups will want to link with you, sending you more
hits.
Usually, the family and friends of a terminally ill person need as
much or more help than the patient. Perhaps you could enlist local
professionals (clergy, social workers, psychologists, caregivers etc)
to write an article/essay that you could post on a page for
caregivers.
Those same professionals might also address the patients wishes too.
As an example, perhaps the patient would like to make a set of rules,
like...don't call me a patient. :) Cry at home, not when you are with
me. I still love to watch sappy movies and eat popcorn with my
friends... bring a DVD and a good attitude to my house instead of us
going to the theatre. You get the idea. The professionals could help
with communicating those needs without alienating your support system.
On a personal note, I think a support website is a lovely tribute to
your sister. Your site looks very inviting, now fill it with useful
content and watch it grow. You know, The Susan Koman Foundation and
Mother's Against Drunk Drivers both started as a tribute to a family
member. |
