wHO ARE the best liver experts in SCOTLAND UK

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Request for Question Clarification by willie-ga on 03 Nov 2002 11:09 PST

Can I ask what you are really looking for?

I can probably provide you with a list of contact details of hepatic
and oncology clinics at Scottish hospitals. Would that be enough?

Or are you looking for some kind of "league table" of Scottish
consultants specialising in hepatic cancers?

willie-ga (in Scotland)

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Clarification of Question by buttony-ga on 04 Nov 2002 13:25 PST

Position is that the diagnosis of cancer of the liver - untreatabloe -
is suspect and a second opinion is sought.  Only the top oncologists -
experts in liver cancer - will confirm ...or offer hope. League tables
if you like, but experts they must be. Thank you

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Request for Question Clarification by willie-ga on 05 Nov 2002 02:24 PST

fsw-ga below has run down almost all the info you need below. I can
only add three names:

Anna Gregory and John Dewar are two of the top oncologists in
Scotland.

Dr Anna Gregory 
Department of Clinical Oncology 
Western General Hospital 
Crewe Road 
Edinburgh 
EH4 2XU 
E-mail:
Anna.Gregor@scotland.gsi.gov.uk
Contact through Liz Porterfield: 
0131 244 2352

Dr John Dewar 
Consultant Radiotherapist and Oncologist 
Department of Radiotherapy 
Ninewells Hospital 
Dundee 
DD1 9SY 
Tel: 01382 632390
Fax: 01382 632885
E-mail: 
johnad@tuht.scot.nhs.uk

Harry Burns is the top cancer consultant in Scotland for ALL cancers.
Dr Harry Burns 
Director of Public Health and Lead Cancer Clinician for Scotland 
Greater Glasgow Health Board 
Dalian House 
PO Box 15327 
350 St. Vincent Street 
Glasgow 
G2 8YZ 
Tel: 0141 201 4602
Fax: 0141 201 4601
E-mail: harry.burns@gghb.scot.nhs.uk

If that's OK as an answer let me know and I'll post it formally.

willie-ga

Hello, and thanks for the question. I'm based in Scotland, and used to
work in the Scottish Health Service, so I had a fair idea where to
look for the right resources.

fsw-ga below has run down almost all the info you need below. I can
add three names:

Anna Gregor and John Dewar are two of the top oncologists in Scotland.

Dr Anna Gregor  
Department of Clinical Oncology  
Western General Hospital  
Crewe Road  
Edinburgh  
EH4 2XU
E-mail: Anna.Gregor@scotland.gsi.gov.uk 
Contact through Liz Porterfield:  0131 244 2352  

Dr John Dewar  
Consultant Radiotherapist and Oncologist  
Department of Radiotherapy  
Ninewells Hospital  
Dundee  DD1 9SY  
Tel: 01382 632390 
Fax: 01382 632885 
E-mail:  johnad@tuht.scot.nhs.uk  

Harry Burns is the top cancer consultant in Scotland for ALL cancers.

Dr Harry Burns  
Director of Public Health and Lead Cancer Clinician for Scotland  
Greater Glasgow Health Board  
Dalian House  
PO Box 15327  
350 St. Vincent Street  
Glasgow  G2 8YZ  
Tel: 0141 201 4602 
Fax: 0141 201 4601

                                  ..o0o..

Consultants can be tricky people to get hold of, and will often
initially turn away calls from patients to avoid conflict with your
own doctor. Another way "in" is to go through a Cancer Support Group.

Tak Tent is a large support group for Scottish-based cancer sufferers,
and provide information, support, education and care for cancer
patients, families, friends and professionals. They have a network of
support groups throughout Scotland. They run a Drop-in Resource and
Information Centre at the following address, and you can email or ring
with your problem, and they'll try to find the right people for you to
talk to.
( http://www.taktent.org.uk )

Tak Tent Cancer Support - Scotland
Flat 5, 30 Shelly Court, Gartnavel Complex, Glasgow G12 0YN 
Tel: 0141 211 0122
Email: tak.tent@care4free.net 

                                 ..o0o..

The Scottish Liver Transplant Unit
 (http://www.show.scot.nhs.uk/sltu/clinical.htm ) offers a free advice
help line where you could discuss your case, and be pointed in the
appropriate direction.
They say:
"Advice for Patients:  Medical, surgical and anaesthetists advice for
patients with liver disease available 24 hours a day."
Telephone: 0131 536 3776 
Scottish Liver Transplant Unit
Lothian University Hospitals NHS Trust
Royal Infirmary of Edinburgh
Lauriston Place
Edinburgh EH3 9YW 

                              ..o0o..


If you don’t get any joy from any of the above, the "British Liver
Trust" is a registered charity that offers advice on all liver related
diseases and will help you out either themselves, or by getting you
access to the right resources.
( www.britishlivertrust.org.uk/ )
Contact them at:

British Liver Trust
Central House
Central Avenue
Ransomes Europark
Ipswich IP3 9QG
Office Tel: 01473 276326
Fax: 01473 276327
E-mail: info@liver-t.demon.co.uk

They say:
"We have a telephone helpline on 01473 276328, for medical enquiries
and information. This free, confidential information service is
staffed by qualified personnel who answer enquiries by telephone or
letter on all aspects of liver disease and its treatment. "

                                 ..o0o..

The other place to try is CancerBACUP, the UK's leading cancer
information service
(http://www.cancerbacup.org.uk/ )
FREEPHONE HELPLINE: 0808 800 1234.


Hope you get what you’re looking for. If you need anything clarifying,
just ask.

willie-ga

Google searches used

hepatic cancer Scotland
liver NHS Scotland
liver cancer specialist Scotland NHS
liver cancer consultant Scotland
hepatic oncology Scotland consultant
hepatic oncology Scotland "support group"
hepatic oncology Scotland NHS therapy
hepatic oncology Scotland charity
liver Scotland charity
cancer Scotland charity

The warmth and understanding of the replies was extremely comforting.  Thank you.

One of the major hospitals for liver disease in the US is the Harvard
Medical School-affliated Lahey Clinic in Burlington, Ma. They have a
world class liver transplant team.

If you are asking abou liver transplants in Scotland, you might seek a
referral from the Lahey clinic, because they're in an excellent
position to make such a referral.  Their website is: 
http://www.lahey.org

If the central issue of your inquiry is liver cancer and it's
treatment by an oncologist, that is an issue which is distinct from a
liver tranplant, since liver cancer treatment may involve therapies
distinct from transplantation.

I am in the Boston area and I am very knowledgable about cancer
therapeutics from a research perspective.  May I suggest that you
contact the following in the US for possible referrals for cancer
therapy, besides the link added above for Lahey Clinic?  I would
suggest the following and they may be found on the internet:

Mayo Clinic: Minnesota
Dana Farber: Boston, Ma
Sloan Kettering: NY, NY

With this battery of weblinks to the very best of US medicine, I feel
confident that you'll receive several excellent referrals to Hospitals
in Scotland.

My best to you!

Buttony,

Liver cancer touched my family in the past, so I wanted to see what I
could find for you in addition to the excellent information from
Researcher7. Perhaps you can review some of the sites below and select
one or more to send an email requesting information or a referral to a
specialist.

Cancer BacUp is the most promising site I located. You can fill out an
online form requesting information personalized to your situation.

Cancer BacUp (UK Cancer Info Service)
Home Page: http://www.cancerbacup.org.uk/
Personalized Information: 
http://www.cancerbacup.org.uk/search/personalised.htm

I also located some cancer sites specific to Scotland.

South East Scotland Cancer Network (SCAN)
http://www.cee.hw.ac.uk/genisys/scan/index.html

Scotland's Health on the Web Links
http://www.show.scot.nhs.uk/AZ.asp#S

Cancer in Scotland (Click “contacts” button at lower left)
http://www.show.scot.nhs.uk/sehd/cancerinscotland/

Next are general UK cancer sites.

Cancer Research UK
Home Page: http://www.cancerhelp.org.uk

List of Research Institutes & Clinical Centers
http://science.cancerresearchuk.org/institutes/?version=1

General Cancer Organizations from Cancer Research UK
http://www.cancerhelp.org.uk/help/default.asp?page=193

Institute of Cancer Research
http://www.icr.ac.uk/cancerinformation.html

British Association for Cancer Research
http://www.icr.ac.uk/bacr/Links.htm

University of Newcastle Cancer Research Unit
http://www.ncl.ac.uk/cancer.research/

Now here are some sites related to liver cancer.

Liver Cancer Network Resources
http://www.livercancer.com/resources/index.html

Liver Tumor Resources
http://www.livertumor.org/resources.asp

American Liver Foundation Online Contact Form
(Perhaps if all else fails they can refer you to experts in your area)
http://www.liverfoundation.org/contactus.shtml

And last, below is a site in the US which helps to link patients with
expert second opinions. According to the site, biopsies from patients
in other countries are accepted.

Find Cancer Experts 
http://www.findcancerexperts.com/request.experts.html

Search Strategy: I went to LiverCancer.com and from there followed
links to other sites.

Warmest regards,
fsw

It seems willie-ga has answered the question but 
can you  help with clarification of your first  response ?
 "Position is that the diagnosis of cancer of the liver - untreatabloe
-
is suspect and a second opinion is sought.  Only the top oncologists -
experts in liver cancer - will confirm ...or offer hope. League tables
if you like, but experts they must be. Thank you"
 Do you mean the diagnosis is suspect or that the opinion that  it is
"untreatable" is suspect?
Perhaps you mean "inoperable". There are treatments both  conventional
and alternative for  inoperable  liver cancers. See
://www.google.co.nz/search?hl=en&ie=UTF-8&oe=UTF-8&newwindow=1&safe=off&q=liver+cancer+treatment&btnG=Google+Search
 Best wishes from a cancer survivor.