***this question is for a researcher who's answered a granny question
before***


I'm looking for information on SD and here's what I have so far (which
isn't all that much):

TIME magazine article dated Nov. 2002 but it's a pay-per-view:
http://www.time.com/time/archive/preview/from_redirect/0,10987,1101021125-391554,00.html

Dr. Heller's book:
http://www.amazon.com/exec/obidos/tg/stores/detail/-/books/0060195207/103-5343333-9627837

there doesn't seem to be a whole lot on this disorder on our friendly
search engine, so I'm wondering if it's known by another name.  I'd
also like to know if it's made it into the DSM-IV and, if so, under
what code type.  

if you would be so kind as to line up some links for me by tomorrow,
that would be great.  thanks ever so much.  gran's gotta turn in and
dream of hiking in New Mexico.

GB

---

Clarification of Question by badabing-ga on 25 Aug 2003 06:50 PDT

thank you all very much for your comments and chell you can post in
the answer box.  you definitely found more than I did and answered by
question on DSM/ICD coding.

I know some kids have been misdiagnosed with ADD/ADHD and a variety of
other diagnoses when it's really SD.  I think Dr. Heller's book
addresses coping mechanisms adults may use if they have this.

miss, darlin', if your med student has anything of relevance on the
adult side or knows of any testing being done, I'll gladly post you a
new question.

thanks so much for everyone's contribution.  you're all very much
appreciated!

Granny,

Thank you for the invitation to post my comment as an answer!
That was very sweet of you. :) I appreciate the oppourtunity
to share what I have learned over the years about this disorder.

Here are a few more links  about Sensory Defensiveness which are
more aimed at the Adult's perspective.

As always, feel free to request a clarification if you need to!
Thanks again!
chellphill-ga

http://www.oneaddplace.com/articles/hype_add.htm
ADD and Hypersensitivity:
Is There A Connection?

http://www.otawatertown.com/newsletter.pdf
Did You Know that Sensory Integration
Intervention Benefits Adults as well as Children?

http://www.sensorycomfort.com/
Making Life More Comfortable for Children and Adults who have Sensory
Processing Differences

*******************************************************************************
Original comment:
 Subject: Re: sensory defensive disorder
From: chellphill-ga on 24 Aug 2003 23:45 PDT 	 

Granny, 
     At your request I am not answering your question formally since I
have never answered one of your questions before, however I have found
quite a bit of information on the subject that I think you will find
interesting.
 
Thanks, 
chellphill-ga 
 
What other names is Sensory Defensive Disorder Known by? 
It seems that at least according to Temple University's Department of
Occupational Therapy and Neurobehavioral laboratory, the condition is
also known as Sensory Defensiveness. The university's web page on
Sensory Defensiveness even refers to the book by Sharon Heller, as
well as a few organizations dedicated to Sensory defensiveness and
Sensory integration disorder.
 
Sensory Defensiveness is a type of sensory integration disorder, which
falls under the category of "Autism Spectrum Disorders".
Sensory Defensiveness has also been linked with Asperger's
syndrome,ADD and AD/HD as well.
 
http://www.nthadelaideps.sa.edu.au/sensory/defens.html 
Sensory Defensiveness 
 
http://www.tsbvi.edu/Outreach/seehear/fall97/sensory.htm 
"Tactile defensiveness, or hyper responsiveness to touch, was
identified by Dr. Ayers in the 1960's."
 
https://mmm1106.verio-web.com/sensor/ja.html 
A. Jean Ayres, PhD, OTR 
 
http://specialchildren.about.com/library/weekly/aa042901a.htm 
   Autism Spectrum Disorders 
"Individuals are sensory (tactilely) defensive in the five senses of
sight, hearing, touch, smell, and taste. Aversions to food, clothing,
and noise are generally symptomatic in the child."
 
http://babyparenting.about.com/library/weekly/aa100397.htm?once=true&
  The Tactile Defensive Child 
"Tactile defensiveness is a condition in which the tactile system is
immature or not functioning properly. The tactile system includes
nerves under the skin's surface that send information to the brain.
This information includes light touch, pain, temperature, and
pressure."
 
http://www.temple.edu/OT/Neuro_Behavioral_Center2.htm 
Adults with Sensory Defensiveness 
"What is sensory defensiveness? Sensory defensiveness is a neural
processing disorder affecting modulation of sensory input which
triggers an inappropriate response to an otherwise harmless stimulus."
 
According to the sensory integration network's FAQ
(http://www.sinetwork.org/faqs/index.html) Sensory Integration
dysfunction is, "a problem in processing sensations which causes
difficulties in daily life. DSI is a complex  neurological disorder,
manifested by difficulty detecting, modulating, discriminating or
integrating sensation adaptively."
 
Here is some of what they have to say about Sensory Defensiveness; 
"These children have nervous systems that feel sensation too easily or
too much. They are overly responsive to sensation. As a result,  they
may have "fight or flight" responses to sensation, a condition called
"sensory defensiveness."
 
http://www.geocities.com/Heartland/Fields/6979/sensory.html 
Sensory Defensiveness and the Processing of Touch 
"The term sensory defensiveness was first described by Knickerbocker
(1980). She believed that a disorganized response to sensory input
(such as being touched) could lead to an inability to inhibit the
flood of sensory input to the brain. In other words, if a non-painful,
ordinary touch is not organized or interpreted normally by the nervous
system, the response of that system may be a "defensive" one."
 
http://www.pediatricneurology.com/autism.htm 
Autism spectrum disorders 
 
http://www.pediatricneurology.com/newpage11.htm 
ADD And AD/HD 
"Sensory Integration (SI) Dysfunction, SI dysfunction is the inability
to process information received through the senses.  The child may be
either oversensitive or undersensitive to stimuli. Or, the child may
not be able to execute a coordinated response to the stimuli. SI may
mimic or co-exist with ADHD. SI is typically evaluated by an
occupational therapist."

thank you most kindly.  looks like a fine buncha links to wet granny's
feet.   I'll post a followup question if I need future refs but with
yours and those added in the comment section, things look fairly
complete.  thank you all very much!

Hiya Granny,

You're right, there's very little about this disorder readily
available.  I *think* it may also go under the generic heading of
"sensory processing disorder".  I've a note out to my med student
friend to see if he can recommend some good sources for you.  In the
meantime, perhaps another Researcher will come up with something
concrete for you.

--Missy

Hi Granny!

I've checked my DSM-IV and there is no "sensory defensive disorder"
listed. And my own personal medical reference is asleep! :) Happy
dreaming!

boquinha

Granny,
     At your request I am not answering your question formally since I
have never answered one of your questions before, however I have found
quite a bit of information on the subject that I think you will find
interesting.

Thanks,
chellphill-ga

What other names is Sensory Defensive Disorder Known by?
It seems that at least according to Temple University's Department of
Occupational Therapy and Neurobehavioral laboratory, the condition is
also known as Sensory Defensiveness. The university's web page on
Sensory Defensiveness even refers to the book by Sharon Heller, as
well as a few organizations dedicated to Sensory defensiveness and
Sensory integration disorder.

Sensory Defensiveness is a type of sensory integration disorder, which
falls under the category of "Autism Spectrum Disorders".
Sensory Defensiveness has also been linked with Asperger's
syndrome,ADD and AD/HD as well.

http://www.nthadelaideps.sa.edu.au/sensory/defens.html
Sensory Defensiveness

http://www.tsbvi.edu/Outreach/seehear/fall97/sensory.htm
"Tactile defensiveness, or hyper responsiveness to touch, was
identified by Dr. Ayers in the 1960's."

https://mmm1106.verio-web.com/sensor/ja.html
A. Jean Ayres, PhD, OTR

http://specialchildren.about.com/library/weekly/aa042901a.htm
   Autism Spectrum Disorders
"Individuals are sensory (tactilely) defensive in the five senses of
sight, hearing, touch, smell, and taste. Aversions to food, clothing,
and noise are generally symptomatic in the child."

http://babyparenting.about.com/library/weekly/aa100397.htm?once=true&
  The Tactile Defensive Child
"Tactile defensiveness is a condition in which the tactile system is
immature or not functioning properly. The tactile system includes
nerves under the skin's surface that send information to the brain.
This information includes light touch, pain, temperature, and
pressure."

http://www.temple.edu/OT/Neuro_Behavioral_Center2.htm
Adults with Sensory Defensiveness
"What is sensory defensiveness? Sensory defensiveness is a neural
processing disorder affecting modulation of sensory input which
triggers an inappropriate response to an otherwise harmless stimulus."

According to the sensory integration network's FAQ
(http://www.sinetwork.org/faqs/index.html) Sensory Integration
dysfunction is, "a problem in processing sensations which causes
difficulties in daily life. DSI is a complex  neurological disorder,
manifested by difficulty detecting, modulating, discriminating or
integrating sensation adaptively."

Here is some of what they have to say about Sensory Defensiveness;
"These children have nervous systems that feel sensation too easily or
too much. They are overly responsive to sensation. As a result,  they
may have "fight or flight" responses to sensation, a condition called
"sensory defensiveness."

http://www.geocities.com/Heartland/Fields/6979/sensory.html
Sensory Defensiveness and the Processing of Touch
"The term sensory defensiveness was first described by Knickerbocker
(1980). She believed that a disorganized response to sensory input
(such as being touched) could lead to an inability to inhibit the
flood of sensory input to the brain. In other words, if a non-painful,
ordinary touch is not organized or interpreted normally by the nervous
system, the response of that system may be a "defensive" one."

http://www.pediatricneurology.com/autism.htm
Autism spectrum disorders

http://www.pediatricneurology.com/newpage11.htm
ADD And AD/HD
"Sensory Integration (SI) Dysfunction, SI dysfunction is the inability
to process information received through the senses.  The child may be
either oversensitive or undersensitive to stimuli. Or, the child may
not be able to execute a coordinated response to the stimuli. SI may
mimic or co-exist with ADHD. SI is typically evaluated by an
occupational therapist."

Here is a webpage dedicated to "sensory processing disorders":
     http://www.sensoryresources.com/

Although, what you are referring to (I believe) is called "Sensory
integration disorder."

"Sensory integration disorder or dysfunction (SID) is a neurological
disorder that results from the brain's inability to integrate certain
information received from the body's five basic sensory systems. These
sensory systems are responsible for detecting sights, sounds, smell,
tastes, temperatures, pain, and the position and movements of the
body. The brain then forms a combined picture of this information in
order for the body to make sense of its surroundings and react to them
appropriately." (Ehendrick.org)

Here is a wealth of information on Sensory Integration Disorder:

http://www.ehendrick.org/healthy/002172.htm
http://www.findarticles.com/cf_dls/g2603/0006/2603000653/p1/article.jhtml
http://www.arcofkingcounty.org/guide/disabilities/about/sid/
http://www.healthatoz.com/healthatoz/Atoz/ency/sensory_integration_disorder.html
http://www.comeunity.com/disability/sensory_integration/sensory-integration.html

http://www.sinetwork.org/ - Sensory Integration Network, full of tons
of resources, articles, etc on the topic. Definitely worth checking
out.

As for the question about a possible listing in the DSM-IV:

"Sensory Integration Disorder" is not recognized as a distinct
disorder in either of the major diagnostic reference books (the ICD-10
and the DSM-IV-TR)."
http://www.tourettesyndrome.net/sensory_overview.htm

From what I've found, Sensory Integration Disorder affects mostly
children- so I hope that this is what you are looking for.  I have
found Sensory Integration Disorder referred to as "Sensory Defensive
Disorder" - and had heard that before, so hopefully this is what you
need.

Please let me know if this is what you needed, and if I can help you
further..

-Rebekah

Wow!  Sorry for the duplicate information, but it appears that
chellphill-ga and I posted at the exact same time (I was stuck in an
internet black hole for 3 minutes because of trouble loading the page,
now I know why).. Anyways, sorry for that.. but, great minds think
alike I guess!  I'm thrilled that someone else had the same
information (SIN) as me, so now I know that it IS absolutely correct.
:)

-Rebekah