Who are the top specialists in the United States for multiple myeloma?

---

Request for Question Clarification by bobbie7-ga on 04 Feb 2004 09:16 PST

Hello again Madison5,

I realize that the list of specialists that I gave you is not as
comprehensive as you may require, however each physician is an expert
in multiple myeloma and they have excellent qualifications.

I did additional research and perhaps this alternative might be of your interest.

FindBestDoc

?FindBestDoc service is a specialty referral that routes patients with
critical or complex cases to the best doctors in the United States
only. If you need a specialist, Best Doctors will locate and recommend
physicians anywhere in the United States who are most qualified to
evaluate and treat your medical condition. We select these doctors
through our database of specialists identified as "the best" in our
annual peer review survey. This survey is a sophisticated process in
which doctors vote on other doctors within their same specialty of
medicine. Only doctors who received the consensus support of their
peers are included in the database, which contains approximately
30,000 physicians (only the top four percent of U.S. physicians).?

Because of the complexity of these cases and the specialized service,
the fee for FindBestDoc is $350
http://www.bestdoctors.com/en/docfinder/am_index.asp

What are your thoughts about this alternative?

Sincerely,
Bobbie7

---

Clarification of Question by madison5-ga on 10 Feb 2004 07:08 PST

I'm hoping to find the top names in the field but would prefer not
spending that amount.

---

Request for Question Clarification by bobbie7-ga on 10 Feb 2004 07:38 PST

Here are some more top names in the field.


Leading Myeloma and Lymphoma Experts Presented Groundbreaking Research
in a Recent Symposium

The Multiple Myeloma Research Foundation (MMRF), in collaboration with
Lymphoma Research Foundation (LRF) and Medical Education Collaborative
held its Institutional Insights symposium, "Novel Therapeutic
Approaches in the Treatment of Multiple Myeloma and Lymphoma," on
Friday, February 6, 2004 at the St. Regis Hotel, in Los Angeles,
California.

"Leading experts in the field of myeloma and lymphoma presenting the
most up-to-date treatment information to local oncologists, nurses,
researchers, patients and their families."


"Ground- breaking research on advances in understanding and treating
myeloma and lymphoma will be presented by the following experts:

Steven Coutre, MD, Stanford University School of Medicine; 
Stephen Forman, MD, City of Hope National Medical Center; 
Randy D. Gascoyne, MD, British Columbia Cancer Agency; 
David Siegel, MD, Hackensack University Medical Center; 
Edward Stadtmauer, MD, University of Pennsylvania School of Medicine;
John M. Timmerman, MD, UCLA School of Medicine.

The esteemed panel will discuss the latest therapies for multiple
myeloma and lymphoma, including: high-dose chemotherapy and stem-cell
transplantation, antibody and vaccine therapy, bone disease management
and, novel new agents, such as CC-5013, thalidomide, and VELCADE
(bortezomib, formerly known as PS-341)?

http://biz.yahoo.com/prnews/040115/nyth160_1.html

If you like, I can locate contact information for the above specialists.

Please let me know how to proceed.

Thanks,
Bobbie7

---

Clarification of Question by madison5-ga on 02 Mar 2004 07:47 PST

Hi, 
Sorry it took me so long to respond. I think I'll go with the first list. Thanks.

Dear Madison5,

Below you will find the contact information for each specialist from
the first list I submitted. I will provide biographical information as
well.

From the International Myeloma Foundation : 

?Expert Opinions on Multiple Myeloma provides physicians with the
chance to see world-renowned myeloma specialists sharing their
knowledge, discussing their treatment choices, and comparing their
perspectives on controversial issues in multiple myeloma and related
diseases.?

- William I. Bensinger, MD

- Brian G. M. Durie, MD

- Robert A. Kyle, MD

- G. David Roodman, MD, PhD

- Seema Singhal, MD

International Myeloma Foundation
http://tinyurl.com/27oq7


===================================================


William I. Bensinger, MD
Professor of Medicine, Division of Oncology
University of Washington School of Medicine
Seattle, Washington

Community of Science profile page
http://myprofile.cos.com/BENSINGER


Dr. William I. Bensinger 
    Member, Fred Hutchinson Clinical Research Center 
    Professor, University of Washington School of Medicine 
    M.D., Northwestern University Medical School, 1973 
    Contact:    Tel. (206) 667-4933 
                     Fax (206) 667-4937 
                     Email wbensing@fhcrc.org
Fred Hutchinson Cancer Research Center
http://www.fhcrc.org/cancer_info/diseases/myeloma/multiple_myeloma_team.html
 

Biographic information
http://216.239.37.104/search?sourceid=navclient-menuext&q=cache:http%3A//www.mededweb.com/imfwebsite/bensinger.html


===================================================


Brian G. M. Durie, MD
Director of Research and Myeloma Programs
Cedars-Sinai Comprehensive Cancer Center
Los Angeles, California

Biographic information
http://216.239.37.104/search?sourceid=navclient-menuext&q=cache:http%3A//www.mededweb.com/imfwebsite/durie.html


Brian Durie, M.D. 

?Dr. Durie is the senior research advisor for hematologic malignancies
at Salick Health Care Inc., and is an attending physician at the
Cedars-Sinai Comprehensive Cancer Center. He is also founder and
chairman of the International Myeloma Foundation. Dr. Durie received
his medical degree from the University of Edinburgh Medical School in
Scotland and completed both his residency and fellowship at the Mayo
Clinic. Along with Dr. Sydney Salmon, he developed the Durie/Salmon
Staging System, which is used worldwide for evaluating patients with
myeloma. He is the recipient of numerous honors and awards for
excellence.?

Health Talk
http://www.healthtalk.com/bios/multiplemyeloma/durie_brian.cfm?CFID=760909&CFTOKEN=64835728


Brian G. Durie, MD
8700 Beverly Bl. CCC
Los Angeles, CA 90048
Phone: (310)423-0702
Fax  : (310)652-8759 
http://www.csmc.edu/mddb/default.asp?specialty=&rank=&lname=durie&fname=&city=&zip=&search=y&x=47&y=7

His email is bdurie@salick.com
http://health.groups.yahoo.com/group/StealthVirus-Patient/message/4412


===================================================


Robert A. Kyle, MD
Professor of Medicine and Laboratory Medicine
Mayo Medical School
Rochester, Minnesota

Biographic information
http://216.239.37.104/search?sourceid=navclient-menuext&q=cache:http%3A//www.mededweb.com/imfwebsite/kyle.html

Summary of current work
http://mayoresearch.mayo.edu/mayo/research/staff/kyle_ra.cfm

Clinical Profile
http://www.mayoclinic.org/hematology-rst/10066977.html

RECENT PUBLICATIONS
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=PureSearch&db=PubMed&details_term=%28kyle%20ra%5BAuthor%5D%20AND%20mayo%5BAll%20Fields%5D%29


Chairman, IMF Scientific Advisory Board
Mayo Clinic
200 1st Street
Rochester, MN 55905
USA
Tel: (507) 284-2865
Fax: (507) 284-0288
http://www.myeloma.org/spider_articles/123.html


===================================================


G. David Roodman, MD, PhD
Director, Myeloma Program 
Visiting Professor of Medicine
University of Pittsburgh
Pittsburgh, Pennsylvania

Biographic information
http://216.239.37.104/search?sourceid=navclient-menuext&q=cache:http%3A//www.mededweb.com/imfwebsite/roodman.html

?David Roodman, M.D., an internationally renowned researcher in
multiple myeloma and bone marrow culture techniques, has joined the
University of Pittsburgh Cancer Institute (UPCI) as director of the
Multiple Myeloma Center. Roodman also has been appointed a professor
of medicine in the Division of Hematology/Oncology at Pitt?s School of
Medicine and will serve as director of UPMC Health System?s Center for
Bone Biology.?

University of Pittsburgh
http://www.discover.pitt.edu/media/pcc011008/specialistCI.html


?Dr. Roodman has authored and co-authored more than 150 publications
in the medical literature. He is a member of the American Society of
Hematology, International Society for Experimental Hematology and the
American Society for Bone and Mineral Research, among others. He is on
the editorial board of several journals including the Journal of
Clinical Investigation and Experimental Hematology.?


Media may schedule an interview with Dr. Roodman by contacting Clare Collins.
(412-647-3555)

Source: News Bureau - University of Pittsburgh
http://newsbureau.upmc.com/Bios/BioRoodman.htm


David Roodman, M.D., Ph.D. 
Office:  E1152 BSTWR 
Phone:412-648-9379 
Fax: 412-648-9723  
roodmangd@msx.upmc.edu  
http://bmg.mgb.pitt.edu/faculty.asp?ID=119

G. David Roodman  
Phone: 412-692-4438 
http://www.clinicaltrials.gov/ct/show/NCT00056160?order=26


University of Pittsburgh Cancer Institute
5150 Centre Avenue
Pittsburgh, PA 15232
Phone: 412-647-2811
E-mail:PCI-INFO@upmc.edu

To schedule an appointment at UPMC Cancer Centers, contact the UPMC
Cancer Centers Information and Referral Service at 412-647-2811.

Main Number/General Information
412-647-2811

To Make an Appointment 
412-692-4724

Patient / Family Education Center (Gumberg Family Library) 
412-623-4733
http://www.upci.upmc.edu/about/contact.html


===================================================


Seema Singhal, MD
Professor of Medicine 
Director, Multiple Myeloma Program
Northwestern University Medical School
Robert H. Lurie Comprehensive Cancer Center
Chicago, Illinois

Biographic information
http://216.239.37.104/search?sourceid=navclient-menuext&q=cache:http%3A//www.mededweb.com/imfwebsite/singhal.html

Seema Singhal, MD
Professor of Medicine
Email: s-singhal@northwestern.edu


?Dr Singhal's research focuses on multiple myeloma, amyloidosis, the
use of adult stem cells for tissue repair, and hematopoietic stem cell
transplantation.?

She has worked extensively on developing new treatment approaches such
as thalidomide and bortezomib (PS-341) for myeloma.  She also has
worked on evaluation of biologically relevant prognostic factors, such
as cytogenetic abnormalities, in multiple myeloma.  She has studied
the effect of the source of stem cells (bone marrow versus blood) on
the outcome of allogeneic transplantation, especially with a view to
improving the outcome of transplantation by decreasing
treatment-related morbidity and mortality and decreasing relapse
rates.

She is actively involved in a number of studies exploring the use of
novel agents in myeloma, studying gene function in myeloma, and using
adult stem cells in repairing heart and central nervous system damage.
 She has published more than 100 peer-reviewed papers on these topics
and regularly reviews manuscripts for various journals.  She has
recently edited a book on myeloma.

She directs the Myeloma Program of the Division of Hematology/Oncology?

http://www.medicine.northwestern.edu/divisions/hematology_oncology/faculty/ssinghal.htm
http://cancer.northwestern.edu/Hematologic_Individuals.cfm
Seema Singhal, director Multiple Myeloma Program, Division of
Hematology and Oncology, Feinberg School of Medicine, Robert H. Lurie
Comprehensive Cancer Center, Northwestern University, Chicago, IL
60611, USA
Email: s-singhal@northwestern.edu
http://bmj.bmjjournals.com/cgi/content/full/327/7415/575

Robert H. Lurie Comprehensive Cancer Center of Northwestern University
Olson 8250
710 North Fairbanks Court
Chicago, Illinois 60611
Tel: (312) 908-5250
Fax: (312) 908-1372
http://www.lurie.northwestern.edu/contact_howtoreach.cfm


Search criteria:
Multiple myeloma specialist
Multiple myeloma expert
Multiple myeloma authority
Multiple myeloma research
Multiple myeloma center 

I hope you find this helpful!  If anything is unclear with my answer,
please ask for clarification.


Best Regards,
Bobbie7

Heloo Madison5,

From the International Myeloma Foundation : 

?Expert Opinions on Multiple Myeloma provides physicians with the
chance to see world-renowned myeloma specialists sharing their
knowledge, discussing their treatment choices, and comparing their
perspectives on controversial issues in multiple myeloma and related
diseases.?

Faculty

William I. Bensinger, MD
Professor of Medicine, Division of Oncology
University of Washington School of Medicine
Seattle, Washington

Brian G. M. Durie, MD
Director of Research and Myeloma Programs
Cedars-Sinai Comprehensive Cancer Center
Los Angeles, California

Robert A. Kyle, MD
Professor of Medicine and Laboratory Medicine
Mayo Medical School
Rochester, Minnesota

G. David Roodman, MD, PhD
Director, Myeloma Program 
Visiting Professor of Medicine
University of Pittsburgh
Pittsburgh, Pennsylvania

Seema Singhal, MD
Professor of Medicine 
Director, Multiple Myeloma Program
Northwestern University Medical School
Robert H. Lurie Comprehensive Cancer Center
Chicago, Illinois

http://www.myeloma.org/myeloma/professionals_index.jsp?type=detail&id=633

If this is the information you?re looking for, just let me know and I
will gladly post it as the official answer to your question. In
addition I will provide contact information for specialist.

Regards,
Bobbie7

I'm trying to respond to the previous comment. The information you
listed is helpful, but I'm not sure how comprehensive it is, since
probably not all the top specialists participate in this particular
venture.

The top treatment center?and also the top research center?for multiple
myeloma is the Myeloma Institute at the University of Arkansas in
Little Rock.
http://www.uams.edu/
http://myeloma.uams.edu/
Chief Doc here is Bart Barlogie
Best Clinician Is Elias ("Elie") Anaissie, ejanaissie@uams.edu
Conelia Williamson (Elie's Asst.) jcwilliamson@uams.edu, 501.296.1503 Ex-1458

Brian Durie is also very good & often provides advice by e-mail and/or
phone. (He often advises myeloma patients to go to Little Rock for
treatment):
Brian G.M. Durie, M.D 
Cedars-Sanai, Los Angeles
bdurie@salick.com.  
His Assistant, Renee Wade at 310-423-3612 or rwade@csccc.com

Best source of online information on this disease is the myeloma
support group at www.acor.org.